Research graph
References from Systematic Review of Patient‐ and Observer‐Reported Outcomes of Fatigue in Pediatric Neuromuscular Disorders. Local targets link to admitted publications; unresolved targets remain external evidence.
Fatigue and Fatigability in Spinal Muscular Atrophy; A Proposed Taxonomy to Enhance Assessment and Treatment
10.1002/mus.28305 · 2025 · External reference
Fatigue and Fatigability in Neurologic Illnesses: Proposal for a Unified Taxonomy
10.1212/wnl.0b013e31827f07be · 2013 · External reference
Quality of Life and Support Needs in Children, Adolescents, and Young Adults With Facioscapulohumeral Dystrophy: A Mixed‐Method Study
10.1016/j.ejpn.2024.04.006 · 2024 · External reference
Identification of the Most Relevant Aspects of Spinal Muscular Atrophy (SMA) With Impact on the Quality of Life of SMA Patients and Their Caregivers: The PROfuture Project, A Qualitative Study
10.1186/s41687-024-00758-0 · 2024 · External reference
Severe Fatigue and Reduced Quality of Life in Children With Hereditary Motor and Sensory Neuropathy 1A
10.1177/0883073812447681 · 2013 · External reference
Health‐Related Quality of Life Associated With Fatigue, Physical Activity and Activity Pacing in Adults With Chronic Conditions
10.1186/s13102-025-01057-x · 2025 · External reference
The Relationship Between Fatigue and Quality of Life in Children With Chronic Health Problems: A Systematic Review
10.1111/j.1744-6155.2007.00099.x · 2007 · External reference
Fatigue Is Part of the Burden of Neuromuscular Diseases
10.1007/s00415-006-0436-0 · 2007 · External reference
Fatigue in Young People With Duchenne Muscular Dystrophy
10.1111/dmcn.14248 · 2020 · External reference
Physical Fatigue and Perceived Fatigability in Adolescents and Adults With Spinal Muscular Atrophy: A Pilot Study
10.1016/j.neurop.2022.06.008 · 2022 · External reference
Factors of Importance for Continuing Education After Primary School in Young People With Neuromuscular Diseases—Patient‐Reported Outcomes From a National Survey
10.1155/ijpe/2604359 · 2025 · External reference
Factors Influencing Participation in Home, School, and Community Settings by Children and Adolescents With Neuromuscular Disorders: A Qualitative Descriptive Study
10.1111/dmcn.15437 · 2023 · External reference
Patient‐Reported Outcome Measures (PROMs): A Review of Generic and Condition‐Specific Measures and a Discussion of Trends and Issues
10.1111/hex.13254 · 2021 · External reference
Unresolved reference
2025 · External reference
What Is Sufficient Evidence for the Reliability and Validity of Patient‐Reported Outcome Measures?
10.1111/j.1524-4733.2007.00272.x · 2007 · External reference
Agreement Between Child Self‐ and Parent Proxy‐Reports of Health‐Related Quality of Life in Spinal Muscular Atrophy: Preliminary Insights From a Nationwide Patient Registry in Germany
10.2147/prom.s517362 · 2025 · External reference
Validation of the Parent‐Proxy Pediatric Charcot–Marie–Tooth Disease Quality of Life Outcome Measure
10.1111/jns.12538 · 2023 · External reference
10.1002/pdi3.77
10.1002/pdi3.77 · External reference
Child‐ and Proxy‐Reported Differences in Patient‐Reported Outcome and Experience Measures in Pediatric Surgery: Systematic Review and Meta‐Analysis
10.1016/j.jpedsurg.2025.162172 · 2025 · External reference
Evidence That School‐Age Children Can Self‐Report on Their Health
10.1367/a03-178r.1 · 2004 · External reference
Validation of the Charcot–Marie–Tooth Disease Pediatric Scale as an Outcome Measure of Disability
10.1002/ana.23572 · 2012 · External reference
Recurrences, Vaccinations and Long‐Term Symptoms in GBS and CIDP
10.1111/j.1529-8027.2009.00243.x · 2009 · External reference
Acute Effects of Different Exercises on Hemodynamic Responses and Fatigue in Duchenne Muscular Dystrophy
2012 · External reference
Physical Activity of Children With a Mitochondrial Disease Compared to Children Who Are Healthy
10.1097/pep.0000000000000016 · 2014 · External reference
Individuals and Families Affected by RYR1‐Related Diseases: The Patient/Caregiver Perspective
10.3233/jnd-240029 · 2024 · External reference
Characterization of Fatigue in Primary Mitochondrial Myopathies: Findings From a Qualitative Interview Study
10.1212/cpj.0000000000200229 · 2024 · External reference
Sleep Disorders in Childhood‐Onset Myotonic Dystrophy Type 1
10.1016/j.nmd.2006.06.007 · 2006 · External reference
COSMIN Risk of Bias Checklist for Systematic Reviews of Patient‐Reported Outcome Measures
10.1007/s11136-017-1765-4 · 2018 · External reference
Strengths and Limitations of Qualitative and Quantitative Research Methods
2017 · External reference
Interviewing to Develop Patient‐Reported Outcome (PRO) Measures for Clinical Research: Eliciting Patients' Experience
10.1186/1477-7525-12-15 · 2014 · External reference
Development of the SMA EFFORT: A New Approach to Characterize Perceived Physical Fatigability in Spinal Muscular Atrophy
10.1177/22143602241313326 · 2025 · External reference
Further Evidence for the Reliability and Validity of the Fatigue and Daytime Sleepiness Scale
10.1016/j.jns.2017.01.032 · 2017 · External reference
Muscle Fatigue—From Motor Units to Clinical Symptoms
10.1016/j.jbiomech.2011.11.047 · 2012 · External reference
Fatigue and Neuromuscular Diseases
10.1016/j.annrmp.2006.04.015 · 2006 · External reference
Fatigue in Child Chronic Health Conditions: A Systematic Review of Assessment Instruments
10.1542/peds.2014-2440 · 2015 · External reference
The Fatigue Conundrum
10.1093/brain/awx153 · 2017 · External reference
The PRISMA 2020 Statement: An Updated Guideline for Reporting Systematic Reviews
10.1136/bmj.n71 · 2021 · External reference
Unresolved reference
2026 · External reference
RoB 2: A Revised Tool for Assessing Risk of Bias in Randomised Trials
10.1136/bmj.l4898 · 2019 · External reference
Newcastle‐Ottawa Scale: Comparing Reviewers' to Authors' Assessments
10.1186/1471-2288-14-45 · 2014 · External reference
The COSMIN Checklist for Assessing the Methodological Quality of Studies on Measurement Properties of Health Status Measurement Instruments: An International Delphi Study
10.1007/s11136-010-9606-8 · 2010 · External reference
COSMIN Guideline for Systematic Reviews of Patient‐Reported Outcome Measures
10.1007/s11136-018-1798-3 · 2018 · External reference
COSMIN Guideline for Systematic Reviews of Patient‐Reported Outcome Measures Version 2.0
10.1007/s11136-024-03761-6 · 2024 · External reference
184th ENMC International Workshop: Pain and Fatigue in Neuromuscular Disorders: 20–22 May 2011, Naarden, the Netherlands
10.1016/j.nmd.2013.06.370 · 2013 · External reference
The Proposal of a Clinical Protocol to Assess Central and Peripheral Fatigue in Myotonic Dystrophy Type 1
10.12871/000398292017125 · 2017 · External reference
Skeletal Muscle Fatigue: Cellular Mechanisms
10.1152/physrev.00015.2007 · 2008 · External reference
Spinal and Supraspinal Factors in Human Muscle Fatigue
10.1152/physrev.2001.81.4.1725 · 2001 · External reference
A Comparison of Central Aspects of Fatigue in Submaximal and Maximal Voluntary Contractions
10.1152/japplphysiol.01053.2007 · 2008 · External reference
Perceived Fatigue in Children and Young Adults With Neurofibromatosis Type 1
10.1111/jpc.14764 · 2020 · External reference
Perceived Fatigue Is Highly Prevalent and Debilitating in Patients With Mitochondrial Disease
10.1016/j.nmd.2015.03.001 · 2015 · External reference
Fatigue in Patients With Spinal Muscular Atrophy Type II and Congenital Myopathies: Evaluation of the Fatigue Severity Scale
10.1007/s11136-013-0565-8 · 2014 · External reference
Central and Peripheral Fatigue in Sustained Maximum Voluntary Contractions of Human Quadriceps Muscle
1978 · External reference
Fatigue in Neurological Disorders
10.1016/s0140-6736(04)15794-2 · 2004 · External reference
The Fatigue Severity Scale. Application to Patients With Multiple Sclerosis and Systemic Lupus Erythematosus
10.1001/archneur.1989.00520460115022 · 1989 · External reference
Unresolved reference
External reference
Experienced Fatigue in Facioscapulohumeral Dystrophy, Myotonic Dystrophy, and HMSN‐I
10.1136/jnnp.2004.050005 · 2005 · External reference
Unresolved reference
2003 · External reference
Impact of Exercise‐Induced Fatigue on the Strength, Postural Control, and Gait of Children With a Neuromuscular Disease
10.1097/phm.0000000000000091 · 2014 · External reference
Fatigue and Aging With a Disability
10.1016/j.apmr.2011.02.017 · 2011 · External reference
Fatigue and Fatigability in Older Adults
10.1016/j.pmrj.2010.03.022 · 2010 · External reference
Reliability and Validity of Self‐Report Questionnaires as Indicators of Fatigue in RYR1‐Related Disorders
10.3233/jnd-180335 · 2019 · External reference
Association of Mitochondrial Dysfunction and Fatigue: A Review of the Literature
10.1016/j.bbacli.2014.04.001 · 2014 · External reference
Item Banking to Improve, Shorten and Computerize Self‐Reported Fatigue: An Illustration of Steps to Create a Core Item Bank From the FACIT‐Fatigue Scale
10.1023/a:1025014509626 · 2003 · External reference
Fatigue in Chronic Disease
10.1042/cs0990001 · 2000 · External reference
Functional Assessment of Chronic Illness Therapy‐Fatigue Scale Is Valid in Patients With Psoriatic Arthritis
10.1136/ard.2006.065763 · 2007 · External reference
The Pittsburgh Fatigability Scale for Older Adults: Development and Validation
10.1111/jgs.13191 · 2015 · External reference
Neurobiology of Muscle Fatigue. Advances and Issues
10.1007/978-1-4899-1016-5_39 · 1995 · External reference
A Comprehensive Qualitative Framework for Health‐Related Quality of Life in Duchenne Muscular Dystrophy
10.1007/s11136-022-03240-w · 2023 · External reference
Mixed Methods Analysis of Health‐Related Quality of Life in Ambulant Individuals Affected With RYR1‐Related Myopathies Pre‐Post‐N‐Acetylcysteine Therapy
10.1007/s11136-020-02428-2 · 2020 · External reference
Development of a Clinical Global Impression of Change (CGI‐C) and a Caregiver Global Impression of Change (CaGI‐C) Measure for Ambulant Individuals With Duchenne Muscular Dystrophy
10.1186/s12955-021-01813-w · 2021 · External reference
10.1186/s12883‐024‐03725‐w
10.1186/s12883‐024‐03725‐w · External reference
Development of a Fatigue Scale
10.1016/0022-3999(93)90081-p · 1993 · External reference
Dimensional Assessment of Chronic Fatigue Syndrome
10.1016/0022-3999(94)90099-x · 1994 · External reference
Initial Validation of the Scale of Perceived Exertion (EPInfant) in Children
2016 · External reference
Fatigue and Daytime Sleepiness Scale in Myotonic Dystrophy Type 1
10.1002/mus.23478 · 2013 · External reference
Validation of the Modified Fatigue Impact Scale in Parkinson's Disease
10.1016/j.parkreldis.2012.11.013 · 2013 · External reference
Psychometric Properties of the Fatigue Catastrophizing Scale in a General Population and Its Clinical Utility in Schizophrenia and Breast Cancer Patients
2024 · External reference
The Multidimensional Fatigue Inventory (MFI) Psychometric Qualities of an Instrument to Assess Fatigue
10.1016/0022-3999(94)00125-o · 1995 · External reference
Fatigue Is a Reliable, Sensitive and Unique Outcome Measure in Rheumatoid Arthritis
10.1093/rheumatology/kep287 · 2009 · External reference
Children's OMNI Scale of Perceived Exertion: Mixed Gender and Race Validation
10.1097/00005768-200002000-00029 · 2000 · External reference
Validity of a Pictorial Perceived Exertion Scale for Effort Estimation and Effort Production During Stepping Exercise in Adolescent Children
10.1177/1356336x020082007 · 2002 · External reference
The PedsQL in Pediatric Cancer: Reliability and Validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module
10.1002/cncr.10428 · 2002 · External reference
Short Fatigue Questionnaire: Screening for Severe Fatigue
10.1016/j.jpsychores.2020.110229 · 2020 · External reference
High Validity and Reliability of the PedsQL Multidimensional Fatigue Scale for Brazilian Children With Cancer
10.1177/1043454214554656 · 2015 · External reference
Rasch Analysis of the Modified Fatigue Severity Scale in Neuromuscular Disorders and Comparison Between Sex, Age and Diagnoses
10.1002/mus.28186 · 2024 · External reference
Unresolved reference
External reference