References

Amyotrophic Lateral Sclerosis: A Clinical Review

10.1111/ene.14393 · 2020 · External reference

Palliative Care in Amyotrophic Lateral Sclerosis

10.1016/j.jpainsymman.2023.06.029 · 2023 · External reference

European Academy of Neurology (EAN) Guideline on the Management of Amyotrophic Lateral Sclerosis in Collaboration With European Reference Network for Neuromuscular Diseases (ERN EURO‐NMD)

10.1111/ene.16264 · 2024 · External reference

Characteristics of Patients With Amyotrophic Lateral Sclerosis Followed by a Home Palliative Care Team

10.1177/10499091241266985 · 2025 · External reference

Clinical Changes in Patients With Amyotrophic Lateral Sclerosis Admitted to a Home Care Program

10.1016/j.jpainsymman.2025.12.026 · 2026 · External reference

El Escorial Revisited: Revised Criteria for the Diagnosis of Amyotrophic Lateral Sclerosis

10.1080/146608200300079536 · 2000 · External reference

Screening for Cognition and Behaviour Changes in ALS

10.3109/21678421.2013.805784 · 2014 · External reference

Unresolved reference

1949 · External reference

The ALSFRS‐R: A Revised ALS Functional Rating Scale That Incorporates Assessments of Respiratory Function

10.1016/s0022-510x(99)00210-5 · 1999 · External reference

The Edmonton Symptom Assessment System 25 Years Later: Past, Present, and Future Developments

10.1016/j.jpainsymman.2016.10.370 · 2017 · External reference

Homecare Amyotrophic Lateral Sclerosis (ALS): A Multidisciplinary, Home‐Based Model of Care for Patients With ALS and Their Caregivers

10.1002/mus.28218 · 2024 · External reference

Natural History of the Revised ALS Functional Rating Scale and Its Association With Survival: The PRECISION‐ALS Extant Study

10.1080/21678421.2024.2443985 · 2025 · External reference

Motor Neurone Disease: A Point‐Prevalence Study of Patient Reported Symptom Prevalence, Severity and Palliative Care Needs

10.1177/02692163231191545 · 2023 · External reference

Minimal Clinically Important Differences in the Edmonton Symptom Assessment Scale in Cancer Patients: A Prospective, Multicenter Study

10.1002/cncr.29437 · 2015 · External reference

End‐of‐Life Management in Patients With Amyotrophic Lateral Sclerosis

10.1016/s1474-4422(14)70221-2 · 2015 · External reference

Effects of Non‐Invasive Ventilation on Survival and Quality of Life in Patients With Amyotrophic Lateral Sclerosis: A Randomized Controlled Trial

10.1016/s1474-4422(05)70326-4 · 2006 · External reference

The Optimisation of Noninvasive Ventilation in Amyotrophic Lateral Sclerosis: A Systematic Review

10.1183/13993003.00261-2019 · 2019 · External reference

Survival in ALS With Home Mechanical Ventilation Non‐Invasively and Invasively: A 15‐Year Cohort Study in West Denmark

10.3109/21678421.2013.837929 · 2014 · External reference

Tracheostomy in Amyotrophic Lateral Sclerosis: A 10‐Year Population‐Based Study in Italy

10.1136/jnnp.2009.175984 · 2010 · External reference

Patients With Amyotrophic Lateral Sclerosis Receiving Long‐Term Mechanical Ventilation: Advance Care Planning and Outcomes

10.1378/chest.110.1.249 · 1996 · External reference

Advance Care Planning in Progressive Neurological Diseases: Lessons From ALS

10.1186/s12904-019-0433-6 · 2019 · External reference

Experiences With Advance Care Planning in Amyotrophic Lateral Sclerosis: Qualitative Longitudinal Study With People With Amyotrophic Lateral Sclerosis and Their Family Carers

10.1177/02692163241242320 · 2024 · External reference

Documentation of Advance Care Planning Forms in Patients With Amyotrophic Lateral Sclerosis

10.1002/mus.27462 · 2022 · External reference

End‐of‐Life Care After the Legal Introduction of Advance Directives: A Qualitative Study Involving Healthcare Professionals and Family Caregivers of Patients With Amyotrophic Lateral Sclerosis

10.1177/0269216320967280 · 2021 · External reference

Goal‐Concordant Care in People With Amyotrophic Lateral Sclerosis Receiving Palliative Care

10.1016/j.jpainsymman.2025.08.046 · 2025 · External reference