Research graph
References from The Bleeding Disorders Research Collaborative. Local targets link to admitted publications; unresolved targets remain external evidence.
The power of the patient's voice in the modern health care system
10.1093/intqhc/mzac001 · 2022 · External reference
Voice of the patient: the essence of patient-centered care
10.1016/j.ccell.2010.03.004 · 2010 · External reference
The effects of shared decision making on health outcomes, health care quality, cost, and consultation time: an umbrella review
10.1016/j.pec.2024.108408 · 2024 · External reference
Lived experience experts: a name created by us for us
10.1080/17474086.2023.2178410 · 2023 · External reference
10.1186/s40900-018-0093-3 · 2018 · Admitted local publication
Unresolved reference
2006 · External reference
Integrated hemophilia patient care via a National Network of Care Centers in the United States: a model for rare coagulation disorders
10.2147/jbm.s325031 · 2021 · External reference
The National Hemophilia Foundation's State of the Science Research Summit: the foundation of a national research blueprint for inherited bleeding disorders
10.1080/17474086.2023.2178412 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research to advance the health of people with inherited bleeding disorders with the potential to menstruate
10.1080/17474086.2023.2175660 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities in health services; diversity, equity, and inclusion; and implementation science
10.1080/17474086.2023.2183836 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for ultra-rare inherited bleeding disorders
10.1080/17474086.2023.2175661 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: facilitating research through infrastructure, workforce, resources and funding
10.1080/17474086.2023.2181781 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities for mucocutaneous bleeding disorders
10.1080/17474086.2023.2171983 · 2023 · External reference
Building the foundation for a community-generated national research blueprint for inherited bleeding disorders: research priorities to transform the care of people with hemophilia
10.1080/17474086.2023.2171981 · 2023 · External reference
Mapping the impact of patient and public involvement on health and social care research: a systematic review
10.1111/j.1369-7625.2012.00795.x · 2014 · External reference
Public involvement in the systematic review process in health and social care: a narrative review of case examples
10.1016/j.healthpol.2011.05.002 · 2011 · External reference
Harnessing the power of community-engaged research
10.2105/ajph.2023.307528 · 2024 · External reference
Community voices research (CVR): a lived experience expert-centred approach to advance the future of inheritable bleeding disorders
10.2478/jhp-2024-0020 · 2024 · External reference
Impact of the 340B pharmacy program on services and supports for persons served by hemophilia treatment centers in the United States
10.1007/s10995-018-2545-7 · 2018 · External reference
Closing the gap in a generation: health equity through action on the social determinants of health
10.1016/s0140-6736(08)61690-6 · 2008 · External reference
Defining the impact of social drivers on health outcomes for people with inherited bleeding disorders
10.3390/jcm11154443 · 2022 · External reference
Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders
10.1371/journal.pone.0229099 · 2020 · External reference
Eliminating explicit and implicit biases in health care: evidence and research needs
10.1146/annurev-publhealth-052620-103528 · 2022 · External reference
Race, ethnicity, and immune tolerance induction in hemophilia A in the United States
10.1016/j.rpth.2023.102251 · 2023 · External reference
What is health equity?
10.1177/237946151800400102 · 2018 · External reference
Health justice through the lens of power
10.1017/jme.2023.5 · 2022 · External reference
Introduction: what is health justice?
10.1017/jme.2023.2 · 2022 · External reference
The roadmap to integrate diversity, equity, and inclusion in hematology clinical trials: an American Society of Hematology initiative
10.1182/bloodadvances.2024013945 · 2025 · External reference
Women's health and healthcare experiences in the years after gestational diabetes or hypertensive disorders of pregnancy
10.1186/s12884-025-07296-7 · 2025 · External reference
A novel gene editing lexicon strategy for the haemophilia community: research plan for development and preliminary results
10.1111/hae.15108 · 2024 · External reference
The Australian traumatic brain injury initiative: single data dictionary to predict outcome for people with moderate-severe traumatic brain injury
10.1089/neu.2023.0467 · 2024 · External reference
Improving the maternity experience for Black, African, Caribbean and mixed-Black families in an integrated care system: a multigroup community and interprofessional co-production prioritisation exercise using nominal group technique
10.1136/bmjqs-2024-017848 · 2024 · External reference
The National Hemophilia Foundation State of the Science Research Summit initiative: executive summary
10.1080/17474086.2023.2181782 · 2023 · External reference
Measuring what matters: a descriptive participatory case evaluation of a tool for measuring outcomes of assistive technology after acquired brain injury
10.1017/brimp.2023.11 · 2023 · External reference
