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References from Informed Consent in Biomedical Research. Local targets link to admitted publications; unresolved targets remain external evidence.
Unresolved reference
External reference
Big data, open science and the brain: lessons learned from genomics
10.3389/fnhum.2014.00239 · 2014 · External reference
In defense of the duty to participate in biomedical research
10.1080/15265160802478594 · 2008 · External reference
Regarding research participation as a moral obligation: who shoulders the burdens and who reaps the benefits?
2010 · External reference
10.1080/15265161.2013.768864
10.1080/15265161.2013.768864 · External reference
Nuances of informed consent: the paradigm of regional Anesthesia
10.1007/s11420-006-9035-y · 2007 · External reference
Unresolved reference
External reference
Where did informed consent for research come from? The journal of law
2018 · External reference
Unresolved reference
External reference
Unresolved reference
External reference
The past, present, and future of informed consent in research and translational medicine
10.1177/1073110518766003 · 2018 · External reference
Unresolved reference
2006 · External reference
The Nuremberg code (1947)
1996 · External reference
Unresolved reference
External reference
A study of prisoners and guards in a simulated prison
1973 · External reference
Unresolved reference
1981 · External reference
Unresolved reference
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Unresolved reference
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Unresolved reference
External reference
Unresolved reference
External reference
Unresolved reference
External reference
Directive 2001/20/EC of the European Parliament and of the council of 4 April 2001 on the approximation of the Laws, regulations and administrative provisions of the member states relating to the implementation of good clinical practice in the conduct of clinical trials on medicinal products for human use
2001 · External reference
10.1038/ejhg.2015.239
10.1038/ejhg.2015.239 · External reference
10.1007/s11948-015-9652-2
10.1007/s11948-015-9652-2 · External reference
The personal genome project
10.1038/msb4100040 · 2005 · External reference
Unresolved reference
2008 · External reference
Unresolved reference
2013 · External reference
Unresolved reference
External reference
Unresolved reference
External reference
10.1186/gm239
10.1186/gm239 · External reference
Privacy and biomedical research: building a trust infrastructure
2012 · External reference
My sister's keeper?: genomic research and the identifiability of siblings
10.1186/1755-8794-1-32 · 2008 · External reference
Unresolved reference
External reference
Unresolved reference
2005 · External reference
Unresolved reference
2012 · External reference
Unresolved reference
2017 · External reference
Unresolved reference
2015 · External reference
10.1109/sp.2008.33
10.1109/sp.2008.33 · 2008 · External reference
Riding with the stars: passenger privacy in the nyc taxicab dataset
2014 · External reference
Unresolved reference
1998 · External reference
Unresolved reference
2017 · External reference
Broken promises of privacy: responding to the surprising failure of anonymization
2009 · External reference
10.1126/science.1229566
10.1126/science.1229566 · External reference
Unresolved reference
2013 · External reference
Unresolved reference
2006 · External reference
Privacy protections: the genome hacker
10.1038/497172a · 2013 · External reference
10.1371/journal.pgen.1000167
10.1371/journal.pgen.1000167 · External reference
10.1002/humu.22460
10.1002/humu.22460 · External reference
Forgetting personal data and revoking consent under the GDPR: challenges and proposed solutions
10.1093/cybsec/tyy001 · 2018 · External reference
Informed consent for return of incidental findings in genomic research
10.1038/gim.2013.145 · 2013 · External reference
Readability standards for informed-consent forms as compared with actual readability
10.1056/nejmsa021212 · 2003 · External reference
Assessing the readability statistics of national consent forms in the UK
10.1111/j.1742-1241.2009.02245.x · 2010 · External reference
Longer consent forms for clinical trials compromise patient understanding: so why are they lengthening?
10.1200/jco.2006.10.3341 · 2007 · External reference
Consent documents for oncology trials: does anybody read these things?
10.1097/01.coc.0000135925.83221.b3 · 2004 · External reference
Challenges of web-based personal genomic data sharing
2012 · External reference
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials
10.1186/1472-6939-14-28 · 2013 · External reference
10.1146/annurev-genom-082509-141711
10.1146/annurev-genom-082509-141711 · External reference
Don't just invite us to the table: authentic community engagement
10.1089/gtmb.2013.1545 · 2013 · External reference
Public preferences and the challenge to genetic research policy
10.1093/jlb/lst001 · 2014 · External reference
Building trust in the power of “big data” research to serve the public good
10.1001/jama.2013.5914 · 2013 · External reference
Dynamic consent: a potential solution to some of the challenges of modern biomedical research
2017 · External reference
The development of large-scale de-identified biomedical databases in the age of genomics—principles and challenges
10.1186/s40246-018-0147-5 · 2018 · External reference
Broad consent for research with biological samples: workshop conclusions
10.1080/15265161.2015.1062162 · 2015 · External reference
From research exemption to research norm: recognising an alternative to consent for large scale biobank research
10.1177/096853321001000403 · 2010 · External reference
Broad consent in biobanking: reflections on seemingly insurmountable dilemmas
10.1177/096853320901000201 · 2009 · External reference
10.1038/clpt.2008.89
10.1038/clpt.2008.89 · External reference
10.1016/j.jbi.2017.01.012
10.1016/j.jbi.2017.01.012 · External reference
10.1378/chest.15-0706
10.1378/chest.15-0706 · External reference
Improving the recruitment activity of clinicians in randomised controlled trials: a systematic review
10.1136/bmjopen-2011-000496 · 2012 · External reference
First, design for data sharing
10.1038/nbt.3516 · 2016 · External reference
Implementation of electronic consent at a biobank: an opportunity for precision medicine research
10.3390/jpm6020017 · 2016 · External reference
Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan
10.1186/s12910-016-0132-2 · 2016 · External reference
The RUDY study platform–a novel approach to patient driven research in rare musculoskeletal diseases
10.1186/s13023-016-0528-6 · 2016 · External reference
Acceptability of a personally controlled health record in a community-based setting: implications for policy and design
10.2196/jmir.1187 · 2009 · External reference
Patient portals and patient engagement: a state of the science review
10.2196/jmir.4255 · 2015 · External reference
23andMe will decode your DNA for $1,000: welcome to the age of genomics
2007 · External reference
10.1177/1073110518766026
10.1177/1073110518766026 · External reference
Consent and research governance in biobanks: evidence from focus groups with medical researchers
10.1159/000336544 · 2012 · External reference
Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
10.1038/ejhg.2012.282 · 2013 · External reference
Unresolved reference
2006 · External reference
Have we asked too much of consent?
10.1002/hast.329 · 2014 · External reference
10.2217/pme.09.48
10.2217/pme.09.48 · External reference
Unresolved reference
1932 · External reference
Unresolved reference
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Unresolved reference
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Unresolved reference
2011 · External reference
Unresolved reference
2016 · External reference
Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
10.1136/medethics-2015-102796 · 2016 · External reference
Unresolved reference
External reference
Big data for all: Privacy and user control in the age of analytics
2012 · External reference
10.1177/1073110518766024
10.1177/1073110518766024 · External reference
A solidarity-based approach to the governance of research biobanks
10.1093/medlaw/fws040 · 2013 · External reference
Personal privacy, public benefits, and biobanks: a conjoint analysis of policy priorities and public perceptions
10.1038/gim.0b013e31822e578f · 2012 · External reference
Critiquing big data: politics, ethics, epistemology
2014 · External reference
Community-based participatory research from the margin to the mainstream: are researchers prepared?
10.1161/circulationaha.107.729863 · 2009 · External reference
K-anonymity: a model for protecting privacy. International journal of uncertainty
10.1142/s0218488502001648 · 2002 · External reference
l-diversity: privacy beyond k-anonymity
10.1145/1217299.1217302 · 2007 · External reference
Unresolved reference
2008 · External reference
10.1007/978-3-540-25955-8_12
10.1007/978-3-540-25955-8_12 · 2004 · External reference
A review of synthetic data generation methods for privacy preserving data publishing
2017 · External reference
Evaluating the risk of patient re-identification from adverse drug event reports
10.1186/1472-6947-13-114 · 2013 · External reference
10.1007/978-3-319-17016-9_17
10.1007/978-3-319-17016-9_17 · 2015 · External reference
A risk-aware access control model for biomedical research platforms
2018 · External reference
Classification of processes involved in sharing individual participant data from clinical trials
10.12688/f1000research.13789.1 · 2018 · External reference
Sharing and reuse of individual participant data from clinical trials: principles and recommendations
10.1136/bmjopen-2017-018647 · 2017 · External reference
Risk-basedDe-identification of health data
10.1109/msp.2010.103 · 2010 · External reference
Unresolved reference
External reference
Unresolved reference
2006 · External reference
Secure multi-party differential privacy
2015 · External reference
Unresolved reference
2016 · External reference
A protocol for the secure linking of registries for HPV surveillance
10.1371/journal.pone.0039915 · 2012 · External reference
Privacy preserving linear regression on distributed databases
2015 · External reference
10.1007/11863908_29
10.1007/11863908_29 · 2006 · External reference
Unresolved reference
2017 · External reference
Unresolved reference
2000 · External reference
Secure surveillance of antimicrobial resistant organism colonization or infection in Ontario
10.1371/journal.pone.0093285 · 2014 · External reference
Secure multi-party computations for biomedical data using distributed statistical learning
10.2196/12702 · 2019 · External reference
How to avoid a dichotomy between autonomy and beneficence: from liberalism to communitarianism and beyond
10.1111/j.1365-2796.2011.02349_2.x · 2011 · External reference