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References from Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives. Local targets link to admitted publications; unresolved targets remain external evidence.
10.7249/rr1520
10.7249/rr1520 · External reference
10.1186/s40246-018-0147-5
10.1186/s40246-018-0147-5 · External reference
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10.1016/j.csbj.2019.03.010 · Admitted local publication
10.1177/1073110518766026
10.1177/1073110518766026 · External reference
Broad consent for research with biological samples: workshop conclusions
10.1080/15265161.2015.1062162 · 2015 · External reference
Sharing health-related data: a privacy test?
10.1038/npjgenmed.2016.24 · 2016 · External reference
The personal genome project
10.1038/msb4100040 · 2005 · External reference
Dynamic consent: a potential solution to some of the challenges of modern biomedical research
2017 · External reference
Community-based participatory research from the margin to the mainstream: are researchers prepared?
10.1161/circulationaha.107.729863 · 2009 · External reference
Re-conceptualizing the Belmont report: a community-based participatory research perspective
10.1300/j125v14n04_02 · 2006 · External reference
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Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?
10.1038/ejhg.2012.282 · 2013 · External reference
10.1146/annurev-genom-082509-141711
10.1146/annurev-genom-082509-141711 · External reference
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The Nuremberg code (1947)
1996 · External reference
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Directive 2001/20/EC of the European Parliament and of the Council of 4 April 2001 on the approximation of the laws, regulations and administrative provisions of the member states relating to the implementation of good clinical practice in the conduct of clinical trials on medicinal products for human use
2001 · External reference
10.1136/amiajnl-2012-001509
10.1136/amiajnl-2012-001509 · External reference
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Broad versus blanket consent for research with human biological samples
10.1002/hast.200 · 2013 · External reference
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10.1007/s11948-015-9652-2
10.1007/s11948-015-9652-2 · External reference
10.1126/science.1095019
10.1126/science.1095019 · External reference
Don’t just invite us to the table: authentic community engagement
10.1089/gtmb.2013.1545 · 2013 · External reference
Public preferences and the challenge to genetic research policy
10.1093/jlb/lst001 · 2014 · External reference
The past, present, and future of informed consent in research and translational medicine
10.1177/1073110518766003 · 2018 · External reference
Informed consent for return of incidental findings in genomic research
10.1038/gim.2013.145 · 2013 · External reference
Enduring and emerging challenges of informed consent
10.1056/nejmra1411250 · 2015 · External reference
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Challenges of web-based personal genomic data sharing
2015 · External reference
Improving understanding in the research informed consent process: a systematic review of 54 interventions tested in randomized control trials
10.1186/1472-6939-14-28 · 2013 · External reference
Inclusion of Indigenous Australians in biobanks: a step to reducing inequity in health care
10.5694/mja2.50219 · 2019 · External reference
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Blockchain technology for improving clinical research quality
10.1186/s13063-017-2035-z · 2017 · External reference
Research misconduct identified by the us food and drug administration: out of sight, out of mind, out of the peer-reviewed literature
10.1001/jamainternmed.2014.7774 · 2015 · External reference
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Implementation of electronic consent at a biobank: an opportunity for precision medicine research
10.3390/jpm6020017 · 2016 · External reference
The health literacy of america’s adults: results from the 2003 national assessment of adult literacy. NCES 2006–483
2006 · External reference
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In defense of the duty to participate in biomedical research
10.1080/15265160802478594 · 2008 · External reference
Regarding research participation as a moral obligation: who shoulders the burdens and who reaps the benefits?
2010 · External reference
10.1038/ejhg.2015.239
10.1038/ejhg.2015.239 · External reference
10.1007/978-1-137-54507-7_21
10.1007/978-1-137-54507-7_21 · External reference
Privacy in the genomic era
2015 · External reference
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10.1038/s41587-019-0271-3
10.1038/s41587-019-0271-3 · External reference
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A risk-based framework for biomedical data sharing
2017 · External reference
