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References from Profound Autism Prevalence and Assessment Practices in a Population-Based Study. Local targets link to admitted publications; unresolved targets remain external evidence.
Unresolved reference
External reference
Centers for Disease Control and Prevention. Prevalence of autism spectrum disorders--Autism and Developmental Disabilities Monitoring Network, six sites, United States, 2000
2007 · External reference
Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years - Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022
10.15585/mmwr.ss7402a1 · 2025 · External reference
Progress and Disparities in Early Identification of Autism Spectrum Disorder: Autism and Developmental Disabilities Monitoring Network, 2002-2016
2021 · External reference
Prevalence and Disparities in the Detection of Autism Without Intellectual Disability
10.1542/peds.2022-056594 · 2023 · External reference
The Lancet Commission on the future of care and clinical research in autism
10.1016/s0140-6736(21)01541-5 · 2022 · External reference
The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016
10.1177/00333549231163551 · 2023 · External reference
A Comparison of Parent-Reported Severe Autism With Mild/Moderate Autism Among US Children
10.1097/dbp.0000000000001306 · 2024 · External reference
Understanding profound autism: implications for stigma and supports
2024 · External reference
Clinical Features of Children at Risk of Profound Autism
2025 · External reference
“There is No Help:” Caregiver Perspectives on Service Needs for Adolescents and Adults with Profound Autism
10.1007/s10803-024-06451-x · 2025 · External reference
Characterization and Outcomes of Profoundly and Non-profoundly Autistic Individuals Admitted to a Specialized Psychiatric Inpatient Unit
2024 · External reference
Unresolved reference
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Developing a Consensus Research Definition for Profound Autism Using a Modified Delphi Method
2026 · External reference
Unresolved reference
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Unresolved reference
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Social vulnerability and prevalence of Autism Spectrum Disorder, Metropolitan Atlanta Developmental Disabilities Surveillance Program (MADDSP)
10.1016/j.annepidem.2023.04.009 · 2023 · External reference
mice: Multivariate Imputation by Chained Equations in R
2011 · External reference
Missing data analysis: making it work in the real world
10.1146/annurev.psych.58.110405.085530 · 2009 · External reference
Prevalence of intellectual disability among eight-year-old children from selected communities in the United States, 2014
10.1016/j.dhjo.2020.101023 · 2021 · External reference
Early neurodevelopmental outcomes of extremely preterm infants
10.1053/j.semperi.2016.09.002 · 2016 · External reference
Public Health Implications of Very Preterm Birth
10.1016/j.clp.2018.05.007 · 2018 · External reference
Unresolved reference
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The role of social determinants in explaining racial/ethnic disparities in perinatal outcomes
10.1038/pr.2015.199 · 2016 · External reference
10.1016/bs.irrdd.2015.03.001
10.1016/bs.irrdd.2015.03.001 · External reference
Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review
10.1111/jar.12852 · 2021 · External reference
Unresolved reference
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Socioeconomic Status and Pediatric Neurologic Disorders: Current Evidence
10.1016/j.spen.2018.03.003 · 2018 · External reference
Autism Spectrum Disorder Among US Children (2002-2010): Socioeconomic, Racial, and Ethnic Disparities
10.2105/ajph.2017.304032 · 2017 · External reference
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2020
10.15585/mmwr.ss7202a1 · 2023 · External reference
Centers for Disease Control and Prevention. Prevalence of autism spectrum disorders--Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2002
2007 · External reference
Centers for Disease Control and Prevention (CDC). Prevalence of autism spectrum disorders - Autism and Developmental Disabilities Monitoring Network, United States, 2006
2009 · External reference
Centers for Disease Control and Prevention. Prevalence of autism spectrum disorders--Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008
2012 · External reference
Centers for Disease Control and Prevention (CDC). Prevalence of autism spectrum disorder among children aged 8 years - Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010
2014 · External reference
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years--Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012
10.15585/mmwr.ss6503a1 · 2016 · External reference
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014
10.15585/mmwr.ss6706a1 · 2018 · External reference
Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2016
10.15585/mmwr.ss6904a1 · 2020 · External reference
Mortality Among Youth and Young Adults With Autism Spectrum Disorder, Intellectual Disability, or Cerebral Palsy
10.1001/jamapediatrics.2025.6120 · 2026 · External reference
Gender and the Premature Deaths of People with Intellectual Disabilities: An International Expert Consultation
10.1111/jppi.12360 · 2021 · External reference
State of the Field: Differentiating Intellectual Disability From Autism Spectrum Disorder
10.3389/fpsyt.2019.00526 · 2019 · External reference
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10.1037/0000194-014
10.1037/0000194-014 · External reference
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Perspectives on adaptive functioning and intellectual functioning measures for intellectual disabilities behavioral research
10.3389/fpsyg.2023.1084576 · 2023 · External reference
Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development
10.1177/13623613231193194 · 2024 · External reference
Prognostic early snapshot stratification of autism based on adaptive functioning
10.1038/s44220-023-00056-6 · 2023 · External reference
SECTION ON DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS. Identification, Evaluation, and Management of Children With Autism Spectrum Disorder
2019 · External reference
Practice parameter for the assessment and treatment of children and adolescents with autism spectrum disorder
10.1016/j.jaac.2013.10.013 · 2014 · External reference
Prevalence of Autism Spectrum Disorder Severity Levels From the Fifth Edition of the Diagnostic and Statistical Manual (DSM-5) in the Autism and Developmental Disabilities Monitoring Network
10.1007/s10803-026-07292-6 · 2026 · External reference
Autism severity and its relationship to disability
10.1002/aur.2898 · 2023 · External reference
Brief report: DSM-5 “levels of support:” a comment on discrepant conceptualizations of severity in ASD
10.1007/s10803-013-1882-z · 2014 · External reference
Autistic Perspectives on the Future of Clinical Autism Research
10.1089/aut.2022.0017 · 2022 · External reference
“Profound Autism” Label Does Not Predict Strengths or Help Plan Supports
10.1177/00333549231199480 · 2023 · External reference
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