Research graph
References from Multistate Analysis of Transfer to Adult Care in Sickle Cell Disease. Local targets link to admitted publications; unresolved targets remain external evidence.
Sickle cell disease in childhood: From newborn screening through transition to adult medical care
10.1016/j.pcl.2013.09.006 · 2013 · External reference
Improved survival of children and adolescents with sickle cell disease
10.1182/blood-2009-07-233700 · 2010 · External reference
Long-term survival with sickle cell disease: A nationwide cohort study of medicare and medicaid beneficiaries
10.1182/bloodadvances.2022009202 · 2023 · External reference
Unresolved reference
External reference
Acute care utilization and rehospitalizations for sickle cell disease
10.1001/jama.2010.378 · 2010 · External reference
Assessing barriers and facilitators to transition in sickle cell disease care prior to implementation of a formalized program
10.1002/pbc.30160 · 2023 · External reference
Transition from paediatric to adult care for patients with sickle cell disease
10.1111/bjh.12700 · 2014 · External reference
Correlates of successful transition in young adults with sickle cell disease
10.1002/pbc.27939 · 2019 · External reference
Identification of risk factors for an unsuccessful transition from pediatric to adult sickle cell disease care
10.1002/pbc.24870 · 2014 · External reference
Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease
10.1182/bloodadvances.2023011268 · 2024 · External reference
Paediatric to adult transition care for patients with sickle cell disease: A global perspective
10.1016/s2352-3026(20)30036-3 · 2020 · External reference
Improving health care transition for young patients with sickle cell disease through quality network
10.1001/jamanetworkopen.2025.4957 · 2025 · External reference
National alliance of sickle cell centers consensus standards for transition to adult care in sickle cell disease
10.1182/bloodadvances.2025015909 · 2025 · External reference
Increasing visibility of sickle cell disease in Indiana: Establishing baseline prevalence using integrated data from multiple sources
10.1177/00333549231170229 · 2024 · External reference
State-based surveillance for selected hemoglobinopathies
10.1038/gim.2014.81 · 2015 · External reference
Improving an administrative case definition for longitudinal surveillance of sickle cell disease
10.1177/0033354919839072 · 2019 · External reference
10.32614/cran.package.npi
10.32614/cran.package.npi · External reference
Trends in blood transfusion, hydroxyurea use, and iron overload among children with sickle cell disease enrolled in medicaid, 2004-2019
10.1002/pbc.30152 · 2023 · External reference
Birth prevalence of sickle cell disease and county-level social vulnerability - sickle cell data collection program, 11 states, 2016-2020
10.15585/mmwr.mm7312a1 · 2024 · External reference
Transition from pediatric to adult care for sickle cell disease: Results of a survey of pediatric providers
10.1002/ajh.22016 · 2011 · External reference
Gaps in care among adolescents and young adults in the U.S
10.1016/j.amepre.2025.107957 · 2025 · External reference
Hematologist encounters among medicaid patients who have sickle cell disease
10.1182/bloodadvances.2022007622 · 2022 · External reference
Variability in health outcomes according to pediatric to adult transfer-of-care status among young adults with sickle cell disease
10.1016/j.jadohealth.2025.01.023 · 2025 · External reference
Effectiveness of health care transition interventions for sickle cell disease
10.1182/bloodadvances.2025016737 · 2026 · External reference
Patterns of healthcare utilization among patients with sickle cell disease hospitalized with pain crises
10.1002/jha2.84 · 2020 · External reference
Transition from pediatric to adult care in sickle cell disease: Establishing evidence-based practice and directions for research
10.1002/ajh.21880 · 2011 · External reference
Mechanism-informed transition from pediatric to adult care in sickle cell disease: A case study
10.1186/s12913-026-14312-9 · 2026 · External reference
Improving outcomes for patients with sickle cell disease in the United States: Making the case for more resources, surveillance, and longitudinal data
10.1001/jamahealthforum.2021.3467 · 2021 · External reference
Building access to care in adult sickle cell disease: Defining models of care, essential components, and economic aspects
10.1182/bloodadvances.2020001743 · 2020 · External reference
What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease
10.1371/journal.pone.0272204 · 2022 · External reference
National alliance of sickle cell centers consensus recommendations on sickle cell disease health maintenance: A consensus statement
10.1001/jamanetworkopen.2025.43421 · 2025 · External reference
Gene therapy for sickle cell disease: Practice recommendations from the American Society for Transplantation and cellular therapy and the international society for cell & gene therapy
2026 · External reference
