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References from Comfort discussing financial challenges and accessing resources in cystic fibrosis care among people with cystic fibrosis and their care partners: A cross-sectional survey study. Local targets link to admitted publications; unresolved targets remain external evidence.
Cystic fibrosis prevalence in the United States and participation in the Cystic Fibrosis Foundation Patient Registry in 2020
10.1016/j.jcf.2023.02.009 · 2023 · External reference
High treatment burden in adults with cystic fibrosis: challenges to disease self-management
10.1016/j.jcf.2008.09.007 · 2009 · External reference
Characterising burden of treatment in cystic fibrosis to identify priority areas for clinical trials
10.1016/j.jcf.2019.10.025 · 2020 · External reference
Healthcare resource utilization and costs among children with cystic fibrosis in the United States
10.1002/ppul.25535 · 2021 · External reference
Cystic fibrosis foundation position paper: redefining the cystic fibrosis care team
10.1016/j.jcf.2024.09.011 · 2024 · External reference
2024 Annual Data Report
2025 · External reference
Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010-2016
10.1002/ppul.24178 · 2018 · External reference
An evaluation of healthcare utilization and clinical charges in children and adults with cystic fibrosis
10.1002/ppul.25251 · 2021 · External reference
Socioeconomic burden of cystic fibrosis in Canada
2024 · External reference
Cost burden among the CF population in the United States: a focus on debt, food insecurity, housing and health services
10.1016/j.jcf.2023.01.002 · 2023 · External reference
Impact of CFTR modulator therapy on basic life needs and financial concerns in people with cystic fibrosis: data from the Well-ME survey
10.1016/j.jcf.2025.01.001 · 2025 · External reference
Job lock and parents of children with cystic fibrosis
10.1001/jamapediatrics.2024.4435 · 2025 · External reference
Exploring the link between job mobility, health insurance, and health-related financial outcomes in people with Cystic fibrosis
10.1513/annalsats.202503-276rl · 2025 · External reference
Financial and healthcare tradeoffs associated with cystic fibrosis care in the United States: a cross-sectional study
10.1016/j.jcf.2025.12.021 · 2026 · External reference
Development of physical and mental health summary scores from the patient-reported outcomes measurement information system (PROMIS) global items
10.1007/s11136-009-9496-9 · 2009 · External reference
Development of the PROMIS (R) pediatric global health (PGH-7) measure
10.1007/s11136-013-0581-8 · 2014 · External reference
Controlling the false discovery rate: a practical and powerful approach to multiple testing
10.1111/j.2517-6161.1995.tb02031.x · 1995 · External reference
Unresolved reference
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Unresolved reference
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Transplant center patient navigator and access to transplantation among high-risk population: a randomized, controlled trial
10.2215/cjn.08600817 · 2018 · External reference
Addressing financial hardship in malignant hematology and hematopoietic cell transplant: a team approach
10.1182/bloodadvances.2024012998 · 2024 · External reference
Patient navigation: addressing social challenges in dialysis patients
10.1053/j.ajkd.2019.06.007 · 2020 · External reference
Coverage and cost-of-care links: addressing financial toxicity among patients with hematologic cancer and their caregivers
2023 · External reference
Patient attitudes regarding health care clinician communication in adolescents with cystic fibrosis
10.1097/mpg.0000000000003844 · 2023 · External reference
Money talks (But Do We?): evaluating perceptions and practices of financial conversations by Cystic Fibrosis clinicians
10.1002/ppul.71612 · 2026 · External reference
458 COST-CF: exploring financial stressors on daily life and access to care within the CF community
10.1016/s1569-1993(24)01298-0 · 2024 · External reference
Clinical communication preferences in cystic fibrosis and strategies to optimize care
10.1002/ppul.24655 · 2020 · External reference
Barriers to patient-physician communication about out-of-pocket costs
10.1111/j.1525-1497.2004.30249.x · 2004 · External reference
Social determinants of health screening and intervention: a cystic fibrosis quality improvement process
10.1002/ppul.26131 · 2022 · External reference
