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References from Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis. Local targets link to admitted publications; unresolved targets remain external evidence.
Unresolved reference
1988 · External reference
Feminist epistemology: An interpretation and a defense
10.1111/j.1527-2001.1995.tb00737.x · 1995 · External reference
Unravelling shared mechanisms: Insights from recent ME/CFS research to illuminate long COVID pathologies
10.1016/j.molmed.2024.02.003 · 2024 · External reference
Muscle abnormalities worsen after post-exertional malaise in long COVID
10.1038/s41467-023-44432-3 · 2024 · External reference
Myalgic encephalomyelitis/chronic fatigue syndrome: The biology of a neglected disease
2024 · External reference
Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: A population-based registry study from Norway 2008-2012
2014 · External reference
“Do Your Own Research”
10.1080/02691728.2022.2146469 · 2024 · External reference
Racism and cardiology: A global call to action
10.1016/j.cjco.2021.09.014 · 2021 · External reference
Trust, distrust, and ‘medical gaslighting
10.1093/pq/pqad035 · 2023 · External reference
Myalgic encephalomyelitis/chronic fatigue syndrome: Essentials of diagnosis and management
10.1016/j.mayocp.2021.07.004 · 2021 · External reference
Unresolved reference
External reference
Typing myalgic encephalomyelitis by infection at onset: A DecodeME study
10.3310/nihropenres.13421.2 · 2023 · External reference
Unresolved reference
2009 · External reference
Cognitive behaviour therapy in chronic fatigue syndrome
10.1136/jnnp.54.2.153 · 1991 · External reference
Unresolved reference
External reference
Diseases as homeostatic property clusters
10.5195/pom.2026.259 · 2026 · External reference
The epistemic grounds for lay interference in the conduct of science
2026 · External reference
Unresolved reference
2016 · External reference
Myalgic encephalomyelitis/Chronic fatigue syndrome: Clinical working case definition, diagnostic and treatment protocols
10.1300/j092v11n01_02 · 2003 · External reference
Myalgic encephalomyelitis: International consensus criteria
10.1111/j.1365-2796.2011.02428.x · 2011 · External reference
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
10.1038/s41467-026-75725-y · 2026 · External reference
Unresolved reference
2021 · External reference
Impact of extended-course oral nirmatrelvir/ritonavir in established long COVID: A case series
10.1038/s43856-024-00668-8 · 2025 · External reference
Perceptions of european ME/CFS experts concerning knowledge and understanding of ME/CFS among primary care physicians in Europe: A report from the european ME/CFS research network (EUROMENE)
10.3390/medicina57030208 · 2021 · External reference
Unresolved reference
External reference
The information-seeking behaviour of doctors: A review of the evidence
10.1111/j.1471-1842.2007.00713.x · 2007 · External reference
Unresolved reference
2018 · External reference
The persistence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) after SARS-CoV-2 infection: A systematic review and meta-analysis
10.1016/j.jinf.2024.106297 · 2024 · External reference
Patient-reported treatment outcomes in ME/CFS and long COVID
2025 · External reference
The construction of lay expertise: AIDS activism and the forging of credibility in the reform of clinical trials
10.1177/016224399502000402 · 1995 · External reference
Unresolved reference
1996 · External reference
The meaning and significance of lay expertise
2023 · External reference
Expert perspectives on myalgic encephalomyelitis/chronic fatigue syndrome – Insights from the 3rd international conference of the charité fatigue center
10.1016/j.autrev.2026.104043 · 2026 · External reference
Pilules roses: De l’ignorance en médecine
2023 · External reference
A pink lie in French medicine
10.1016/j.shpsa.2025.102075 · 2025 · External reference
Repeated maximal exercise tests of peak oxygen consumption in people with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review and meta-analysis
2022 · External reference
Undone science: Charting social movement and civil society challenges to research agenda setting
10.1177/0162243909345836 · 2010 · External reference
The chronic fatigue syndrome: A comprehensive approach to its definition and study
10.7326/0003-4819-121-12-199412150-00009 · 1994 · External reference
Mono-causal and multi-causal theories of disease: How to think virally and socially about the aetiology of AIDS
10.1007/s10912-017-9441-9 · 2020 · External reference
Nirmatrelvir-ritonavir and symptoms in adults with postacute sequelae of SARS-CoV-2 infection: The STOP-PASC randomized clinical trial
10.1001/jamainternmed.2024.2007 · 2024 · External reference
The ‘Cognitive Behavioural Model’ of chronic fatigue syndrome: Critique of a flawed model
10.1177/2055102919838907 · 2019 · External reference
Further commentary on the PACE trial: Biased methods and unreliable outcomes
10.1177/1359105317714486 · 2017 · External reference
Doctors Who?
2022 · External reference
Diagnosis and management of myalgic encephalomyelitis/chronic fatigue syndrome
10.1016/j.mayocp.2023.07.032 · 2023 · External reference
Ignorance and Investigation
2023 · External reference
The power of belief: Psychosocial influence on illness
2006 · External reference
Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in Post-COVID condition and myalgic encephalomyelitis/chronic fatigue syndrome
10.1007/s15010-024-02386-8 · 2025 · External reference
Trust, distrust and commitment
10.1111/nous.12000 · 2014 · External reference
Unresolved reference
2019 · External reference
Unresolved reference
2007 · External reference
Unresolved reference
2016 · External reference
An audit of UK Hospital doctors' knowledge and experience of myalgic encephalomyelitis
10.3390/medicina57090885 · 2021 · External reference
Chronic fatigue syndrome: A working case definition
10.7326/0003-4819-108-3-387 · 1988 · External reference
Biopsychosocial model or bio-political ideology? Medically unexplained symptoms, welfare reform and the implications for Long-COVID
2022 · External reference
Towards a critical psychology of chronic fatigue syndrome: Biopsychosocial narratives and UK welfare reform
2022 · External reference
Holistic or harmful? Examining socio-structural factors in the biopsychosocial model of chronic illness, ‘Medically Unexplained Symptoms’ and disability
10.1080/09687599.2022.2099250 · 2024 · External reference
Unresolved reference
2015 · External reference
Are myalgic encephalomyelitis and chronic fatigue syndrome different illnesses? A preliminary analysis
10.1177/1359105313520335 · 2016 · External reference
Inability of myalgic encephalomyelitis/chronic fatigue syndrome patients to reproduce VO2peak indicates functional impairment
10.1186/1479-5876-12-104 · 2014 · External reference
Epistemic injustice and illness
10.1111/japp.12172 · 2017 · External reference
Unresolved reference
2010 · External reference
Introducing the issues
2020 · External reference
The prospects of the two-day Cardiopulmonary Exercise Test (CPET) in ME/CFS patients: A meta-analysis
10.3390/jcm9124040 · 2020 · External reference
Unresolved reference
1990 · External reference
The evolution of medical specialism
10.1353/pbm.1979.0018 · 1979 · External reference
Special issue on the PACE trial
10.1177/1359105317722370 · 2017 · External reference
Patient-led research collaborative: Embedding patients in the long COVID narrative
10.1097/pr9.0000000000000913 · 2021 · External reference
Royal free epidemic of 1955: A reconsideration
10.1136/bmj.1.5687.7 · 1970 · External reference
10.1080/02691728.2026.2646178
10.1080/02691728.2026.2646178 · External reference
An outbreak of encephalomyelitis in the Royal Free Hospital Group, London, in 1955
10.1136/bmj.2.5050.895 · 1957 · External reference
Updated ME/CFS prevalence estimates reflecting Post-COVID increases and associated economic costs and funding implications
2022 · External reference
European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert consensus on the diagnosis, service provision, and care of people with ME/CFS in Europe
10.3390/medicina57050510 · 2021 · External reference
AIDS and the scientific governance of medicine in post-apartheid South Africa
10.1093/afraf/adm087 · 2008 · External reference
Unresolved reference
2010 · External reference
Unresolved reference
2025 · External reference
A literature review of GP knowledge and understanding of ME/CFS: A report from the Socioeconomic Working Group of the European network on ME/CFS (EUROMENE)
10.3390/medicina57010007 · 2020 · External reference
Agnotology: A missing term to describe the cultural production of ignorance (and its study)
2008 · External reference
Unresolved reference
2008 · External reference
Unresolved reference
1988 · External reference
Investigating undergraduate medical education on myalgic encephalomyelitis/chronic fatigue syndrome
10.18573/bsdj.308 · 2022 · External reference
Graded exercise therapy should not be recommended for patients with post-exertional malaise
10.1038/s41569-024-00992-5 · 2024 · External reference
Precipitating factors for the chronic fatigue syndrome
10.1016/s0022-3956(96)00050-7 · 1997 · External reference
Nirmatrelvir– ritonavir versus placebo–ritonavir in individuals with long COVID in the USA (PAX LC): A double-blind, randomised, placebo-controlled, phase 2, decentralised trial
10.1016/s1473-3099(25)00073-8 · 2025 · External reference
Fighting Post-COVID and ME/CFS – Development of curative therapies
2023 · External reference
West Indian abortifacients and the making of ignorance
2008 · External reference
Unresolved reference
2021 · External reference
Unresolved reference
2019 · External reference
Advancing research and treatment: An overview of clinical trials in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and future perspectives
10.3390/jcm13020325 · 2024 · External reference
A report–chronic fatigue syndrome: Guidelines for research
10.1177/014107689108400224 · 1991 · External reference
Cognitive behavior therapy for chronic fatigue syndrome: Efficacy and implications
10.1016/s0002-9343(98)00170-3 · 1998 · External reference
A Report--Chronic fatigue syndrome: Guidelines for research
10.1177/014107689108400224 · 1991 · External reference
Chronic fatigue syndrome and an illness-focused approach to care: Controversy, morality and paradox
10.1136/medhum-2018-011598 · 2019 · External reference
How doctors learn: Physicians' self-directed learning episodes
10.1097/00001888-199910000-00014 · 1999 · External reference
How doctors learn: Education and learning through the medical-school-to-practice trajectory
10.1097/00001888-200110000-00008 · 2001 · External reference
The case for routine patient review in long COVID research
10.1016/s1473-3099(26)00134-9 · 2026 · External reference
Unresolved reference
2001 · External reference
Unresolved reference
2015 · External reference
Understanding medical students' views of chronic fatigue syndrome: A qualitative study
10.1177/1359105313501534 · 2015 · External reference
Chronic fatigue syndrome: A cognitive approach
10.1016/0005-7967(94)00077-w · 1995 · External reference
Why the psychosomatic view on myalgic encephalomyelitis/chronic fatigue syndrome is inconsistent with current evidence and harmful to patients
10.3390/medicina60010083 · 2023 · External reference
Primary healthcare provision and chronic fatigue syndrome: A survey of Patients' and General Practitioners' beliefs
10.1186/1471-2296-6-49 · 2005 · External reference
Women's experiences of medical miss-diagnosis: How does gender matter in healthcare settings?
2020 · External reference
Myalgic encephalomyelitis, chronic fatigue syndrome, and systemic exertion intolerance disease: Three distinct clinical entities
10.3390/challe9010019 · 2018 · External reference
Myalgic encephalomyelitis/chronic fatigue syndrome: Organic disease or psychosomatic illness? A Re-Examination of the royal free epidemic of 1955
10.3390/medicina57010012 · 2020 · External reference
Unresolved reference
2021 · External reference
Unresolved reference
2025 · External reference
The emergence of medical specialization in the nineteenth century
10.1353/bhm.2003.0150 · 2003 · External reference
Management of chronic (Post-Viral) fatigue syndrome
1989 · External reference
Response to the editorial by Dr geraghty
10.1177/1359105316688953 · 2017 · External reference
Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): A randomised trial
10.1016/s0140-6736(11)60096-2 · 2011 · External reference
Rethinking the treatment of chronic fatigue Syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
10.1186/s40359-018-0218-3 · 2018 · External reference
Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary Re-Analysis of the PACE trial
2017 · External reference
Brainstem dysfunction as a potential etiology of ME/CFS and long COVID: A mechanical basis
2026 · External reference
