Research graph
References from Burden assessment tools in epilepsy caregiving: A scoping review. Local targets link to admitted publications; unresolved targets remain external evidence.
Caregiver well-being: a multidimensional examination of family caregivers of demented adults
10.1093/geront/26.3.253 · 1986 · External reference
A dyadic model of living with epilepsy based on the perspectives of adults with epilepsy and their support persons
10.1016/j.yebeh.2015.09.023 · 2015 · External reference
The effects of alternative support strategies on family caregiving
10.1093/geront/29.4.457 · 1989 · External reference
Caregiving and the stress process: an overview of concepts and their measures
10.1093/geront/30.5.583 · 1990 · External reference
Caregiver burden: A review of the literature
1998 · External reference
The reliability, validity and feasibility of tools used to screen for caregiver burden: A systematic review
2009 · External reference
Caring for family members with chronic physical illness: A critical review of caregiver literature
10.1186/1477-7525-2-50 · 2004 · External reference
Support for family carers who care for an elderly person at home - a systematic literature review
10.1111/j.1471-6712.2004.00269.x · 2004 · External reference
What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness
10.1191/0269216303pm667oa · 2003 · External reference
Systematic review of information and support interventions for caregivers of people with dementia
10.1186/1471-2318-7-18 · 2007 · External reference
Appraisal of caregiving, burden and psychological distress in relatives of psychiatric inpatients
10.1016/j.eurpsy.2004.06.030 · 2004 · External reference
Burden Assessment Schedule: Development and validation of an instrument to measure burden in caregivers of chronic mentally ill patients
1998 · External reference
Relatives of the impaired elderly: Correlates of feelings of burden1
10.1093/geront/20.6.649 · 1980 · External reference
The parenting stress index
2006 · External reference
Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses
10.1590/s1516-44462002000100006 · 2002 · External reference
Preliminary assessment of the psychometric properties of the abridged Arabic version of the Zarit Burden Interview among caregivers of cancer patients
10.1016/j.ejon.2013.06.005 · 2013 · External reference
PRISMA extension for scoping reviews (PRISMA-ScR): Checklist and explanation
10.7326/m18-0850 · 2018 · External reference
Rayyan-a web and mobile app for systematic reviews
10.1186/s13643-016-0384-4 · 2016 · External reference
Unresolved reference
External reference
COSMIN risk of bias checklist for systematic reviews of patient-reported outcome measures
2018 · External reference
The metric properties of Zarit caregiver burden scale: validation study of a Chinese version
10.1097/wad.0b013e3181902334 · 2008 · External reference
The Italian version of the Zarit Burden interview: A validation study
10.1017/s1041610210002218 · 2011 · External reference
Caregiver burden in dementia: Evaluation with a Japanese version of the Zarit caregiver burden interview
1998 · External reference
Validation and Reliability of the 12-item Zarit Burden Interview among Informal Caregivers of Elderly Persons in Nigeria
2018 · External reference
Unresolved reference
External reference
The parental stress scale: Initial psychometric evidence
10.1177/0265407595123009 · 1995 · External reference
Unresolved reference
External reference
Caregiving in pediatric epilepsy: Results of focus groups and implications for research and practice
10.1016/j.yebeh.2014.03.002 · 2014 · External reference
10.1101/2022.08.29.22279325
10.1101/2022.08.29.22279325 · External reference
Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups
10.1016/j.yebeh.2017.06.012 · 2017 · External reference
Carer burden and its predictors in epilepsy, a study using BOSS (Burden of Seizure Scale) - a novel epilepsy specific carer burden questionnaire
2009 · External reference
A longitudinal assessment of parenting stress in parents of children with new-onset epilepsy
10.1093/jpepsy/jsaa091 · 2021 · External reference
Mapping the burden on caregivers of people with epilepsy during the COVID-19 pandemic-Pilot study
2024 · External reference
10.1016/j.yebeh.2023.109297
10.1016/j.yebeh.2023.109297 · External reference
Quality of life and level of burden in primary caregivers of patients with epilepsy: Effect of neuropsychiatric comorbidity
10.1016/j.yebeh.2018.01.034 · 2018 · External reference
Affiliate stigma and caregiver burden in intractable epilepsy
10.1016/j.yebeh.2018.05.028 · 2018 · External reference
Caregiver burden in epilepsy: Determinants and impact
2014 · External reference
Social, psychological and financial burden on caregivers of children with chronic illness: A cross-sectional study
10.1007/s12098-015-1762-y · 2015 · External reference
Burden in caregivers of adults with epilepsy in Asian families
10.1016/j.seizure.2019.07.008 · 2019 · External reference
Impact of epilepsy surgery on quality of life and burden of caregivers in children and adolescents
10.1016/j.yebeh.2020.106961 · 2020 · External reference
Prevalence and predictors of depressive symptoms among caregivers of patients with epilepsy in Hong Kong
10.1016/j.yebeh.2023.109411 · 2023 · External reference
Family resilience and subjective responses to caregiving for children with epilepsy
2022 · External reference
A general practice-based prevalence study of epilepsy among adults with intellectual disabilities and of its association with psychiatric disorder, behaviour disturbance and carer stress
10.1111/j.1365-2788.2007.01025.x · 2008 · External reference
A comparative study of perceived burden in parent caregivers of adolescents with epilepsy in a resource-restricted setting: Investigating the explanatory factors of perceived burden
10.1016/j.yebeh.2021.107992 · 2021 · External reference
Factors associated with caregiver burden of adults with epilepsy in a middle-income country
10.1016/j.seizure.2022.03.015 · 2022 · External reference
The effects of the Fordyce’s 14 Fundamentals for Happiness program on happiness and caregiver burden among the family caregivers of patients with epilepsy: A randomized controlled trial
10.1016/j.seizure.2020.10.013 · 2020 · External reference
Parents of children with enduring epilepsy: Predictors of parenting stress and parenting
10.1016/j.yebeh.2007.05.001 · 2007 · External reference
Impact of caregiver burden on health-related quality of life and family functioning of carers of children with epilepsy at the charlotte maxeke johannesburg academic hospital, south africa
10.7196/sajch.2020.v14i2.1603 · 2020 · External reference
Psychosocial impact of epilepsy in women of childbearing age in India
10.1684/epd.2008.0213 · 2008 · External reference
Depression and anxiety in adult persons with epilepsy and their caregivers: A survey-based study at a tertiary care center
10.1097/nmd.0000000000001436 · 2022 · External reference
Evaluation of care burden and caregiving preparedness in caregivers of patients with epilepsy: A sample in eastern Turkey
10.1016/j.yebeh.2021.108370 · 2021 · External reference
Affiliate stigma and caregiver burden in parents of children with epilepsy
2024 · External reference
Parenting stress in mothers of children with intractable epilepsy
10.1016/j.yebeh.2008.02.011 · 2008 · External reference
Caregiver burden and its predictors in adult epilepsy patients
10.1016/j.yebeh.2024.109685 · 2024 · External reference
Sleep quality, caregiver burden, and individual resilience among parents of children with epilepsy
10.1016/j.yebeh.2022.108873 · 2022 · External reference
Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditionsyoru
10.1007/s11136-019-02409-0 · 2020 · External reference
Caregivers ’ perspectives on the long-term seizure- and non-seizure-related benefits of fenfluramine on patients with dravet syndrome and their families
10.1212/wnl.96.15_supplement.1529 · 2021 · External reference
Correlates of caregiving burden among bedouin-muslim mothers of children diagnosed with epilepsy
10.3390/ijerph191811595 · 2022 · External reference
The development of The epileptic seizure parental burden scale: A validity and reliability study
10.1016/j.pedn.2022.11.019 · 2023 · External reference
Impact of pediatric epilepsy on the family: a new scale for clinical and research use
10.1046/j.1528-1157.2001.081420.x · 2001 · External reference
Family burden, child disability, and the adjustment of mothers caring for children with epilepsy: Role of social support and coping
10.1016/j.yebeh.2017.01.013 · 2017 · External reference
The Impact on Family Scale: Psychometric analysis of long and short forms in parents of children with epilepsy
10.1016/j.yebeh.2013.12.030 · 2014 · External reference
Association of hemoglobin A1c with the incidence of hypertension: A large prospective study
10.3389/fendo.2022.1098012 · 2023 · External reference
Self-control and coping responses are mediating factors between child behavior difficulties and parental stress and family impact in caregivers of children with severe epilepsy
10.1016/j.yebeh.2021.108224 · 2021 · External reference
The burden of parenting children with frontal lobe epilepsy
10.1016/j.yebeh.2019.05.034 · 2019 · External reference
The Parental Stress Scale: Psychometric properties in families of children with chronic health conditions
10.1111/fare.12306 · 2018 · External reference
Determinants of caregiver burden in male patients with epilepsy following penetrating traumatic brain injury
10.1016/j.yebeh.2021.107768 · 2021 · External reference
Parenting stress in parents of children with epilepsy and asthma
10.1177/0883073807308712 · 2008 · External reference
Parenting stress and childhood epilepsy: The impact of depression, learning, and seizure-related factors
10.1016/j.yebeh.2008.03.010 · 2008 · External reference
Parenting stress evaluation and behavioral syndromes in a group of pediatric patients with epilepsy
10.1016/j.yebeh.2013.07.020 · 2013 · External reference
Kim D
2019 · External reference
The impact of parenting stress on parents of school-age children with drug-resistant epilepsy
10.3389/fped.2022.948286 · 2022 · External reference
Validation of the pediatric epilepsy self-management questionnaire: Assessing disease management in children with epilepsy
2009 · External reference
Parental stress in pediatric epilepsy after therapy withdrawal
10.1016/j.yebeh.2019.03.029 · 2019 · External reference
Stress and perceived stigma among parents of children with epilepsy
10.1007/s10072-019-03822-6 · 2019 · External reference
Parenting stress and perceived stigma in mothers of young children with epilepsy: A case-control study
10.1016/j.yebeh.2018.10.016 · 2018 · External reference
Parental stress, pediatric quality of life, and behavior at baseline and one-year follow-up: Results from the FEBSTAT study
10.1016/j.yebeh.2017.01.024 · 2017 · External reference
The burden of caring for individuals with tuberous sclerosis complex (TSC) who experience epileptic seizures: A descriptive UK survey
10.1007/s41669-023-00387-1 · 2023 · External reference
The impact of epilepsy on preschool children and their families
10.1016/j.yebeh.2016.04.045 · 2016 · External reference
Quality of life and burden in caregivers of patients with epilepsy
10.1097/01376517-200712000-00006 · 2007 · External reference
Psychosocial burden in mothers with epilepsy and their caregiver: Feasibility and preliminary results of a digital screening procedure
10.1016/j.yebeh.2024.110017 · 2024 · External reference
The effect of synbiotics in the treatment of drug-resistant epilepsy and the parental burden of caregivers: A single-arm pretest-posttest trial
10.1186/s12887-024-05134-x · 2024 · External reference
Sociocultural factors influence on burden and stress of caregivers of children with epilepsy
10.1017/cjn.2024.271 · 2025 · External reference
Neurocognitive, behavioral, and treatment burden as key predictors of parental stress in pediatric epilepsy
10.1111/epi.18580 · 2025 · External reference
Impact of a psychoeducation on caregiver burden, internalized stigma, anxiety, and coping in caregivers of children with epilepsy: A randomized pilot study
10.1111/nhs.70095 · 2025 · External reference
The caregivers’ self-efficacy, burden, and perceived social supports among adult caregivers of people with epilepsy in Southeast Nigeria: A cross-sectional study
10.1016/j.yebeh.2025.110579 · 2025 · External reference
Psychological status and family burden in caregivers of adult people with epilepsy
10.1016/j.yebeh.2025.110458 · 2025 · External reference
Risk factors affecting quality of life in children with epilepsy and their caregivers: A secondary analysis of a cross-sectional online survey in Japan
10.1016/j.yebeh.2024.110227 · 2025 · External reference
Association between behavioral problems and parental stress in children and adolescents with epilepsy
10.1016/j.yebeh.2024.110229 · 2025 · External reference
The relationship between caregiver burden and life satisfaction in caregivers of individuals with epilepsy: An example in eastern Turkey
10.1016/j.yebeh.2025.110275 · 2025 · External reference
Prevalence and associated factors of caregiving burden among caregivers of adults with epilepsy in Malaysia - A cross-sectional study
2025 · External reference
A measure of perceived burden among caregivers
10.1177/016327879301600205 · 1993 · External reference
Parenting stress index–fourth edition (PSI-4)
2012 · External reference
Carers Assessment of Difficulties Index (CADI): psychometric properties for use with carers of people with dementia
10.1080/13607860600844523 · 2007 · External reference
The burden on the family of a psychiatric patient: development of an interview schedule
10.1192/bjp.138.4.332 · 1981 · External reference
Validation of a Caregiver Strain Index
10.1093/geronj/38.3.344 · 1983 · External reference
Illness Intrusiveness and the Psychosocial Impact of Lifestyle Disruptions in Chronic Life-Threatening Disease
10.1016/s1073-4449(12)80007-0 · 1994 · External reference
The PedsQL Family Impact Module: Preliminary reliability and validity
10.1186/1477-7525-2-55 · 2004 · External reference
Childhood illness-related parenting stress: The pediatric inventory for parents
10.1093/jpepsy/26.3.155 · 2001 · External reference
Unresolved reference
External reference
A global measure of perceived stress
10.2307/2136404 · 1983 · External reference
Family caregivers of older adults: Improving helping skills
10.1093/geront/23.6.637 · 1983 · External reference
Prognosis of prolonged mechanically ventilated patients with disorders of consciousness in a long- term acute care hospital in comparison to patients who are cognitively intact or cognitively impaired
2022 · External reference
