Research graph
References from Burden and social context of caregivers of children and adolescents with Charcot-Marie-Tooth disease. Local targets link to admitted publications; unresolved targets remain external evidence.
Challenges in modelling the Charcot-Marie-Tooth neuropathies for therapy development
10.1136/jnnp-2018-318834 · 2019 · External reference
New developments in Charcot-Marie-Tooth neuropathy and related diseases
10.1097/wco.0000000000000474 · 2017 · External reference
Genetic epidemiology of Charcot-Marie-Tooth disease
10.1111/ane.12013 · 2012 · External reference
Phenotypic Variability of Childhood Charcot-Marie-Tooth Disease
10.1001/jamaneurol.2016.0171 · 2016 · External reference
Natural history of Charcot-Marie-Tooth disease during childhood
10.1002/ana.25009 · 2017 · External reference
Longitudinal assessment of natural disease progression in Brazilian children and adolescents with Charcot-Marie-Tooth disease
10.1055/s-0045-1811174 · 2025 · External reference
Are we prepared for clinical trials in Charcot-Marie-Tooth disease?
10.1016/j.brainres.2019.146625 · 2020 · External reference
Clinical practice guideline for the management of paediatric Charcot-Marie-Tooth disease
10.1136/jnnp-2021-328483 · 2022 · External reference
Cost of illness in Charcot-Marie-Tooth neuropathy: Results from Germany
10.1212/wnl.0000000000007376 · 2019 · External reference
Gait and footwear in children and adolescents with Charcot-Marie-Tooth disease: A cross-sectional, case-controlled study
10.1016/j.gaitpost.2018.03.029 · 2018 · External reference
Charcot-Marie-Tooth disease: a review of clinical developments and its management - What's new in 2025?
10.1080/14737175.2025.2470980 · 2025 · External reference
Foot surgery for adults with Charcot-Marie-Tooth disease
10.1136/pn-2023-003825 · 2024 · External reference
Rehabilitation Management of the Charcot-Marie-Tooth Syndrome: A Systematic Review of the Literature
10.1097/md.0000000000003278 · 2016 · External reference
Safety and efficacy of progressive resistance exercise for Charcot-Marie-Tooth disease in children: a randomised, double-blind, sham-controlled trial
10.1016/s2352-4642(17)30013-5 · 2017 · External reference
Why don't we see more translation of health promotion research to practice? Rethinking the efficacy-to-effectiveness transition
10.2105/ajph.93.8.1261 · 2003 · External reference
Treatment research at the crossroads: the scientific interface of clinical trials and effectiveness research
10.1176/ajp.156.1.5 · 1999 · External reference
Barriers and facilitating factors of care coordination for children with spinal muscular atrophy type I and II from the caregivers' perspective: an interview study
10.1186/s13023-023-02739-w · 2023 · External reference
Facilitators of and Barriers to Caregiver Adherence to Home Therapy Recommendations for Infants and Children With Neuromotor and Neuromuscular Diagnoses: A Scoping Review
10.5014/ajot.2024.050567 · 2024 · External reference
Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study
10.1186/s41687-022-00425-2 · 2022 · External reference
Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease
10.3390/ijerph18062991 · 2021 · External reference
Parents as informal caregivers of children and adolescents with spinal muscular atrophy: a systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs
10.1186/s13023-022-02407-5 · 2022 · External reference
Validation of the Charcot-Marie-Tooth disease pediatric scale as an outcome measure of disability
10.1002/ana.23572 · 2012 · External reference
Translation and cross-cultural adaptation of the Charcot-Marie-Tooth disease Pediatric Scale to Brazilian Portuguese and determination of its measurement properties
10.1016/j.bjpt.2020.07.008 · 2021 · External reference
Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale
10.1016/s0003-9993(96)90164-1 · 1996 · External reference
Adaptação ao contexto cultural brasileiro e validação do Caregiver Burden scale
1998 · External reference
10.7476/9788575413913
10.7476/9788575413913 · External reference
Correlation and simple linear regression
10.1148/radiol.2273011499 · 2003 · External reference
Duchenne muscular dystrophy and caregiver burden: a systematic review
10.1111/dmcn.13934 · 2018 · External reference
Disability and caregiver burden: Unique challenges in a developing country
10.3233/prm-220070 · 2023 · External reference
Burden of Spinal Muscular Atrophy (SMA) on Patients and Caregivers in Canada
10.3233/jnd-200610 · 2021 · External reference
Caregiver Burden and Depression in Parents of Children with Chronic Diseases
10.5152/turkarchpediatr.2024.23126 · 2024 · External reference
A community-engaged approach to quantifying caregiver preferences for the benefits and risks of emerging therapies for Duchenne muscular dystrophy
10.1016/j.clinthera.2014.04.011 · 2014 · External reference
Economic burden of spinal muscular atrophy in the United States: a contemporary assessment
10.1080/13696998.2019.1646263 · 2020 · External reference
[The health system of Brazil]
2011 · External reference
Physician communication and patient adherence to treatment: a meta-analysis
10.1097/mlr.0b013e31819a5acc · 2009 · External reference
Patient adherence and effective communication
10.1016/j.anai.2016.08.029 · 2016 · External reference
Social desirability bias in qualitative health research
10.11606/s1518-8787.2022056004164 · 2022 · External reference
