Research graph
References from Assessing and improving data quality in health registries: a systematic review of dimensions, frameworks, and artificial intelligence-enabled approaches. Local targets link to admitted publications; unresolved targets remain external evidence.
Defining and improving data quality in medical registries: a literature review, case study, and generic framework
10.1197/jamia.m1087 · 2002 · External reference
A systematic overview of rare disease patient registries: challenges in design, quality management, and maintenance
10.1186/s13023-023-02719-0 · 2023 · External reference
Design and development of a web-based registry for outpatient rehabilitation: a Delphi multi-disciplinary, expert consensus study
10.1002/hsr2.70237 · 2025 · External reference
National quality registries: how to improve the quality of data?
10.21037/jtd.2018.04.146 · 2018 · External reference
The national cardiovascular data registry data quality program 2020: JACC state-of-the-art review
10.1016/j.jacc.2022.02.034 · 2022 · External reference
An automated data verification approach for improving data quality in a clinical registry
10.1016/j.cmpb.2019.01.012 · 2019 · External reference
Data quality assessment
10.1145/505248.506010 · 2002 · External reference
Facilitating harmonized data quality assessments. A data quality framework for observational health research data collections with software implementations in R
10.1186/s12874-021-01252-7 · 2021 · External reference
A framework for current and new data quality dimensions: an overview
2024 · External reference
Which patients have missing data? An analysis of missingness in a trauma registry
10.1016/j.injury.2012.07.185 · 2012 · External reference
Classifying, measuring and improving the quality of data in trauma registries: a review of the literature
10.1016/j.injury.2016.01.007 · 2016 · External reference
Evaluation of data quality in the cancer registry: principles and methods Part II. Completeness
10.1016/j.ejca.2008.11.033 · 2009 · External reference
Unresolved reference
2008 · External reference
Bad data costs the US $3 trillion per year
2016 · External reference
Unresolved reference
2023 · External reference
Are data from national quality registries used in quality improvement at Swedish hospital clinics?
10.1093/intqhc/mzx132 · 2017 · External reference
The Dutch Institute for Clinical Auditing: achieving Codman’s dream on a nationwide basis
10.1097/sla.0000000000003665 · 2020 · External reference
Development and pilot test of the registry evaluation and quality standards tool: an information technology-based tool to support and review registries
10.1016/j.jval.2021.12.018 · 2022 · External reference
Methods and dimensions of electronic health record data quality assessment: enabling reuse for clinical research
10.1136/amiajnl-2011-000681 · 2013 · External reference
Quality of EHR data extractions for studies of preterm birth in a tertiary care center: guidelines for obtaining reliable data
10.1186/s12887-016-0592-z · 2016 · External reference
Unsupervised anomaly detection of implausible electronic health records: a real-world evaluation in cancer registries
10.1186/s12874-023-01946-0 · 2023 · External reference
Using machine learning to link electronic health records in cancer registries: on the tradeoff between linkage quality and manual effort
10.1016/j.ijmedinf.2024.105387 · 2024 · External reference
Evaluating robustly standardized explainable anomaly detection of implausible variables in cancer data
10.1093/jamia/ocaf011 · 2025 · External reference
Unresolved reference
2022 · External reference
Automating electronic health record data quality assessment
10.1007/s10916-022-01892-2 · 2023 · External reference
Leveraging machine-learning techniques to detect recurrences in cancer registry data: a multi-registry validation study using German lung cancer data
10.1016/j.ejca.2025.115604 · 2025 · External reference
Unresolved reference
2020 · External reference
Machine learning-based strategies for improving healthcare data quality: an evaluation of accuracy, completeness, and reusability
10.3389/frai.2025.1621514 · 2025 · External reference
Artificial intelligence-based automated international classification of diseases coding: a systematic review
2025 · External reference
The effect of machine learning algorithms in the prediction, and diagnosis of meningitis: a systematic review
10.1002/hsr2.1893 · 2024 · External reference
AI-driven data optimization: automating cleaning, feature engineering, and augmentation for superior machine learning performance in digital health care system
10.32996/jcsts.2023.5.4.23 · 2023 · External reference
10.1007/978-3-032-04375-7_3
10.1007/978-3-032-04375-7_3 · External reference
The METRIC-framework for assessing data quality for trustworthy AI in medicine: a systematic review
10.1038/s41746-024-01196-4 · 2024 · External reference
Development of data quality indicators for improving hospital international classification of diseases–coded health data quality globally
10.1097/mlr.0000000000002024 · 2024 · External reference
Unresolved reference
2024 · External reference
The PRISMA 2020 statement: an updated guideline for reporting systematic reviews
10.1136/bmj.n71 · 2021 · External reference
10.1136/bmjopen-2020-039246
10.1136/bmjopen-2020-039246 · 2018 · External reference
Unresolved reference
2001 · External reference
Training in data definitions improves quality of intensive care data
10.1186/cc1886 · 2003 · External reference
Assessing the validity of tuberculosis surveillance data in California
10.1186/1471-2458-6-217 · 2006 · External reference
Development and implementation of a high-quality clinical database: the Australian and New Zealand Intensive Care Society Adult Patient Database
10.1016/j.jcrc.2005.11.010 · 2006 · External reference
Regional administrative health registries as a resource in clinical epidemiology: a study of options, strengths, limitations and data quality provided with examples of use
10.3233/jrs-1997-10101 · 1997 · External reference
Accuracy of hospital discharge data for cancer registration and epidemiological research in Northern Ireland
2000 · External reference
Short communication: data quality after restructuring a national medical registry
10.1177/140349489502300113 · 1995 · External reference
Using disease registries for pharmacoepidemiological research: a case study of data from a cystic fibrosis registry
10.1002/pds.804 · 2003 · External reference
Challenges for routine health system data management in a large public programme to prevent mother-to-child HIV transmission in South Africa
10.1371/journal.pone.0005483 · 2009 · External reference
The University of Texas Houston Stroke Registry (UTHSR): implementation of enhanced data quality assurance procedures improves data quality
10.1186/1471-2377-13-61 · 2013 · External reference
Identifying periods of acceptable computer usage in primary care research databases
10.1002/pds.3368 · 2013 · External reference
Integrating electronic health record information to support integrated care: practical application of ontologies to improve the accuracy of diabetes disease registers
10.1016/j.jbi.2014.07.016 · 2014 · External reference
The National Cardiovascular Data Registry (NCDR) data quality brief: the NCDR Data Quality Program in 2012
10.1016/j.jacc.2012.07.020 · 2012 · External reference
Task-independent metrics to assess the data quality of medical registries using the ESTS database
2010 · External reference
Development and implementation of the first national data quality standards for population-based birth defects surveillance programs in the United States Health policies, systems and management in high-income countries
10.1186/s12889-015-2223-2 · 2015 · External reference
Data quality and completeness in a web stroke registry as the basis for data and process mining
10.1260/2040-2295.5.2.163 · 2014 · External reference
Is the quality of data in an electronic medical record sufficient for assessing the quality of primary care?
10.1136/amiajnl-2012-001479 · 2014 · External reference
10.3233/978-1-61499-432-9-171
10.3233/978-1-61499-432-9-171 · 2014 · External reference
Data quality monitoring and performance metrics of a prospective, population-based observational study of maternal and newborn health in low resource settings
10.1186/1742-4755-12-s2-s2 · 2015 · External reference
Improving aboriginal health data capture: evidence from a health registry evaluation
10.1017/s095026881000275x · 2011 · External reference
Glocal clinical registries: pacemaker registry design and implementation for global and local integration—methodology and case study
10.1371/journal.pone.0071090 · 2013 · External reference
Assessment and perceptions of intensive care data quality, reporting and use: a survey of ICU directors
10.1177/0310057x1204000414 · 2012 · External reference
A practical framework for data management processes and their evaluation in population-based medical registries
10.3109/17538157.2012.735731 · 2013 · External reference
A global assessment of civil registration and vital statistics systems: monitoring data quality and progress
10.1016/s0140-6736(15)60171-4 · 2015 · External reference
QAIT: a quality assurance issue tracking tool to facilitate the improvement of clinical data quality
10.1016/j.cmpb.2012.08.010 · 2013 · External reference
Reporting systems, reporting rates and completeness of data reported from primary healthcare to a Swedish quality register—the National Diabetes Register
10.1016/j.ijmedinf.2011.06.006 · 2011 · External reference
Creation of a hyponatremia registry supported by an industry-derived quality control methodology
10.4338/aci-2010-07-ra-0040 · 2011 · External reference
Data quality of the Australia and New Zealand dialysis and transplant registry: a pilot audit
10.1111/nep.12126 · 2013 · External reference
Data quality of the monoclonal gammopathy of undetermined significance diagnosis in a hospital registry
10.2147/clep.s50757 · 2013 · External reference
Validity of registry data: agreement between cancer records in an end-stage kidney disease registry (voluntary reporting) and a cancer register (statutory reporting)
10.1111/j.1440-1797.2010.01297.x · 2010 · External reference
Data completeness can be optimized in clinical databases
2011 · External reference
Identifying and improving unreliable items in registries through data auditing
10.1093/intqhc/mzr004 · 2011 · External reference
Adherence to secondary prophylaxis for rheumatic heart disease is underestimated by register data
10.1371/journal.pone.0178264 · 2017 · External reference
10.1109/bhi.2017.7897256
10.1109/bhi.2017.7897256 · External reference
Linkage of the CF foundation patient registry with the pediatric health information system database
10.1002/ppul.24272 · 2019 · External reference
Audit of ethnicity data in the Waikato hospital patient management system and trauma registry: pilot of the hospital ethnicity data audit toolkit
2018 · External reference
A longitudinal analysis of data quality in a large pediatric data research network
10.1093/jamia/ocx033 · 2017 · External reference
10.1186/s13023-017-0603-7
10.1186/s13023-017-0603-7 · External reference
Unresolved reference
2019 · External reference
Maximising data value and avoiding data waste: a validation study in stroke research
10.5694/mja2.12029 · 2019 · External reference
Looking beyond the numbers: quality assurance procedures in the Global Network for Women’s and Children’s Health Research Maternal Newborn Health Registry
10.1186/s12978-020-01009-3 · 2020 · External reference
Data quality evaluation for observational multiple sclerosis registries
10.1177/1352458516662728 · 2017 · External reference
Assessing race and ethnicity data quality across cancer registries and EMRs in two hospitals
10.1093/jamia/ocv156 · 2016 · External reference
Quality assurance of the Western Denmark heart registry, a population-based healthcare register
2017 · External reference
Are there patients missing from community heart failure registers? An audit of clinical practice
10.1177/2047487318810839 · 2019 · External reference
The validity of registered synchronous peritoneal metastases from colorectal cancer in the Danish medical registries
10.2147/clep.s238193 · 2020 · External reference
Data quality assessment on congenital anomalies in Ontario, Canada
10.3389/fped.2020.573090 · 2020 · External reference
Data quality at the Singapore Cancer Registry: an overview of comparability, completeness, validity and timeliness
10.1016/j.canep.2016.06.006 · 2016 · External reference
Estimating completeness of national and subnational death reporting in Brazil: application of record linkage methods
10.1186/s12963-020-00223-2 · 2020 · External reference
Quality of malaria data in public health facilities in three provinces of Mozambique
10.1371/journal.pone.0231358 · 2020 · External reference
Unresolved reference
External reference
Applying probabilistic temporal and multisite data quality control methods to a public health mortality registry in Spain: a systematic approach to quality control of repositories
10.1093/jamia/ocw010 · 2016 · External reference
A novel method to assess data quality in large medical registries and databases
10.1093/intqhc/mzy249 · 2019 · External reference
Indicators of data quality at the Cancer Registry Zurich and Zug in Switzerland
10.1155/2018/7656197 · 2018 · External reference
10.1186/s13023-019-1088-3
10.1186/s13023-019-1088-3 · 2019 · External reference
Evolving quality standards for large-scale registries: the GARFIELD-AF experience
2017 · External reference
Development of a tool for comprehensive evaluation of population-based cancer registries
10.1016/j.ijmedinf.2018.06.006 · 2018 · External reference
Unresolved reference
External reference
Impact of missing data on bias and precision when estimating change in patient-reported outcomes from a clinical registry
10.1186/s12955-019-1181-2 · 2019 · External reference
Injury coding in a national trauma registry: a one-year validation audit in a level 1 trauma centre
10.1186/s12873-019-0276-8 · 2019 · External reference
Dutch Gastrointestinal Endoscopy Audit: automated extraction of colonoscopy data for quality assessment and improvement
10.1016/j.gie.2020.01.052 · 2020 · External reference
The completeness and accuracy of the Norwegian Female Incontinence Registry
10.1111/aogs.13951 · 2020 · External reference
Data integrity of the Pediatric Cardiac Critical Care Consortium (PC4) clinical registry
10.1017/s1047951115001833 · 2016 · External reference
Unresolved reference
External reference
Interrater reliability of a national acute myocardial infarction register
10.2147/clep.s105933 · 2016 · External reference
The Danish Neuro-Oncology Registry: establishment, completeness and validity
10.1186/s13104-016-2233-x · 2016 · External reference
The reliability and accuracy of operational system data in a nationwide helicopter emergency medical services mission database
10.1186/s12873-019-0265-y · 2019 · External reference
Creating longitudinal datasets and cleaning existing data identifiers in a cystic fibrosis registry using a novel Bayesian probabilistic approach from astronomy
10.1371/journal.pone.0199815 · 2018 · External reference
Pilot study of the completeness of notification of adult tuberculosis in Athens, Greece
10.5588/ijtld.15.0907 · 2016 · External reference
Completeness and accuracy of local clinical registry data for children undergoing heart surgery
10.1016/j.athoracsur.2016.06.111 · 2017 · External reference
Evaluation of the Western Australian register of developmental anomalies: thirty-five years of surveillance
10.1002/bdra.23575 · 2016 · External reference
How useful are registered birth statistics for health and social policy? A global systematic assessment of the availability and quality of birth registration data
10.1186/s12963-018-0180-6 · 2018 · External reference
The Danish Hip Arthroscopy Registry: registration completeness and patient characteristics between responders and non-responders
10.2147/clep.s264683 · 2020 · External reference
Data quality audit of a clinical quality registry: a generic framework and case study of the Australian and New Zealand Hip Fracture Registry
10.1136/bmjoq-2018-000490 · 2019 · External reference
Data verification of nationwide clinical quality registries
10.1002/bjs5.50209 · 2019 · External reference
A systematic framework for analyzing observation data in patient-centered registries: case study for patients with depression
10.2196/18366 · 2020 · External reference
Random forest machine learning matches human expert accuracy in trauma severity scoring
10.1002/wjs.70114 · 2025 · External reference
Implementation of a data control framework to ensure confidentiality, integrity, and availability of high-quality real-world data (RWD) in the NeuroTransData (NTD) registry
10.1093/jamiaopen/ooac017 · 2022 · External reference
Data quality and patient coverage at Sina Hospital Trauma Registry affiliated with the National Trauma Registry of Iran
2023 · External reference
The Regensburg Dental Trauma Registry: methodical framework for the systematic collection of dentoalveolar trauma data
10.3390/jcm13237196 · 2024 · External reference
Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry: lessons from an ECFSPR data quality project
10.1016/j.jcf.2023.08.015 · 2024 · External reference
Development and validation of a simple algorithm to estimate common gestational age categories using standard administrative birth record data in Ontario, Canada
10.1080/01443615.2020.1726304 · 2021 · External reference
Audit and quality assessment of national Persian registry of cardiovascular disease (N-PROVE) in terms of comorbidities, angiography, and angioplasty characteristics in Iran
2024 · External reference
Data quality and patient characteristics in European ANCA-associated vasculitis registries: data retrieval by federated querying
10.1136/ard-2023-224571 · 2024 · External reference
Quality registry improves the data of chronic ulcers: validation of Tampere Wound Registry
10.1111/iwj.14270 · 2023 · External reference
Digitizing paper-based military health records from Norwegian males born in 1950—assessments of data quality and applicability in research
2025 · External reference
Identifying recurrent breast cancer patients in national health registries using machine learning
10.1080/0284186x.2023.2201687 · 2023 · External reference
The impact of data quality assurance and control solutions on the completeness, accuracy and consistency of data in a national spine registry (NSCIR)
2018 · External reference
Assessing disparities through missing race and ethnicity data: results from a juvenile arthritis registry
10.3389/fped.2024.1430981 · 2024 · External reference
Quality of data sets in empirical health research: the IDEFIM Framework
2025 · External reference
Assessing the validity and cover rate of the National Swedish Hernia Register
10.2147/clep.s335765 · 2021 · External reference
Development of an electronic burns register: digitisation of routinely collected hospital data for global burns surveillance
10.1016/j.burns.2023.08.007 · 2024 · External reference
Data cleaning for clinician researchers: application and explanation of a data-quality framework
10.1016/j.aucc.2024.03.004 · 2024 · External reference
Anomaly detection algorithm for real-world data and evidence in clinical research: implementation, evaluation, and validation study
10.2196/27172 · 2021 · External reference
Accuracy and agreement of national spine register data for 474 patients compared to corresponding electronic patient records
10.1007/s00586-021-07093-8 · 2022 · External reference
The quality evaluation of rare disease registries—an assessment of the essential features of a disease registry
10.3390/ijerph182211968 · 2021 · External reference
Case completeness in the Norwegian Cardiac Arrest Registry
10.1016/j.resplu.2021.100182 · 2021 · External reference
Handling missing data in a rheumatoid arthritis registry using random forest approach
10.1111/1756-185x.14203 · 2021 · External reference
The Danish Heart Failure Registry: a validation study of content
10.2147/clep.s390898 · 2022 · External reference
Evaluation of data quality in the Spanish EURECCA Esophagogastric Cancer Registry
10.1016/j.ejso.2021.04.025 · 2021 · External reference
Visualising data models of patient registries and clinical studies—a method for quality check of EDC systems
2024 · External reference
Inaccuracies exist in trauma registry data regarding shooting intent for pediatric firearm injuries
10.1016/j.jpedsurg.2024.161911 · 2025 · External reference
Improving the connection between population-based and national clinical pediatric cancer registries—a pilot study on neuroblastoma: the Italian BENCHISTA-Ita Project
10.3390/cancers17243894 · 2025 · External reference
A quality assessment of the ARM-net registry design and data collection
10.1016/j.jpedsurg.2023.02.049 · 2023 · External reference
Data accuracy in the European Cystic Fibrosis Society Patient Registry: results of an on-site data validation project
10.1186/s13023-025-04153-w · 2025 · External reference
Data quality assessment of a South African electronic registry for drug-resistant TB, 2015-2016
10.5588/pha.20.0031 · 2021 · External reference
Data monitoring roadmap. The experience of the Italian Multiple Sclerosis and Related Disorders Register
10.1007/s10072-023-06876-9 · 2023 · External reference
Quality assurance of national internet-based patient register data: experiences during the operation of the Hungarian Myocardial Infarction Registry, 2010–2020
10.1556/650.2021.31965 · 2021 · External reference
Improving clinical registry data quality via linkage with survival data from state-based population registries
10.1200/cci.24.00025 · 2024 · External reference
Validating the data completeness and accuracy of the Canadian Cystic Fibrosis Registry
2025 · External reference
A quality management system aiming to ensure regulatory-grade data quality in a glaucoma registry
10.1371/journal.pone.0286669 · 2023 · External reference
Identifying strengths and gaps in data management and reporting through malaria routine data quality assessment: results from two health regions in Madagascar
10.4269/ajtmh.23-0224 · 2025 · External reference
Data quality assessment of the Dutch Breast Implant Registry by automated data verification using medical billing data
10.1016/j.bjps.2024.08.051 · 2024 · External reference
A robust prioritization framework of data quality dimensions to improve ML-driven healthcare systems using AHP and sensitivity analysis
10.1109/access.2025.3601031 · 2025 · External reference
Electronic health record data quality assessment and tools: a systematic review
10.1093/jamia/ocad120 · 2023 · External reference
Digital health data quality issues: systematic review
10.2196/42615 · 2023 · External reference
A harmonized data quality assessment terminology and framework for the secondary use of electronic health record data
2016 · External reference
Artificial intelligence-based automated international classification of diseases coding: a systematic review
10.4103/jmss.jmss_76_24 · 2025 · External reference
Assessing data quality in heterogeneous health care integration: simulation study of the AIDAVA framework
10.2196/75275 · 2025 · External reference
Medical data quality assessment: on the development of an automated framework for medical data curation
10.1016/j.compbiomed.2019.03.001 · 2019 · External reference
A data quality assessment guideline for electronic health record data reuse
2017 · External reference
10.1109/icabcd.2018.8465129
10.1109/icabcd.2018.8465129 · 2018 · External reference
