Research graph
References from Return of Research Results to Participants in Longitudinal Cohort Studies in Health Research: Findings From 24 Cohorts of the Amsterdam Cohort Hub. Local targets link to admitted publications; unresolved targets remain external evidence.
Disclosing Individual Results of Clinical Researchimplications of Respect for Participants
10.1001/jama.294.6.737 · 2005 · External reference
Identifying Evidence of Effectiveness in the Co‐Creation of Research: A Systematic Review and Meta‐Analysis of the International Healthcare Literature
10.1093/pubmed/fdz126 · 2021 · External reference
Unresolved reference
External reference
Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient‐Centered Special Interest Group
10.1016/j.jval.2020.01.019 · 2020 · External reference
‘Maybe They Have Found Something New’ Participants' Views on Returning Cohort Psychosocial Survey Results
10.1111/hex.12211 · 2015 · External reference
Ethical, Legal, and Counseling Challenges Surrounding the Return of Genetic Results in Oncology
10.1200/jco.2012.45.2789 · 2013 · External reference
Return of Individual Research Results From Genomic Research: A Systematic Review of Stakeholder Perspectives
10.1371/journal.pone.0258646 · 2021 · External reference
IRB Perspectives on the Return of Individual Results From Genomic Research
10.1038/gim.2011.10 · 2012 · External reference
Unresolved reference
2018 · External reference
Offering Aggregate Results to Participants in Genomic Research: Opportunities and Challenges
10.1038/gim.2011.62 · 2012 · External reference
Return of Aggregate Results to Study Participants: Facilitators, Barriers, and Recommendations
10.1016/j.conctc.2023.101136 · 2023 · External reference
Ethical Considerations for Sharing Aggregate Results From Pragmatic Clinical Trials
10.1177/17407745241290782 · 2025 · External reference
Co‐Creating a Patient and Public Involvement and Engagement ‘How To’ Guide for Researchers
10.1186/s40900-020-00208-3 · 2020 · External reference
Return of Research Results to Study Participants: Uncharted and Untested
10.1001/jama.2018.7898 · 2018 · External reference
Cohort Profile: The Amsterdam Born Children and Their Development (ABCD) Study
10.1093/ije/dyq128 · 2011 · External reference
Changes in Parenting Self‐Efficacy and Mood Symptoms in the Transition to Parenthood: A Bidirectional Association
10.1080/15295192.2014.972758 · 2014 · External reference
Parenting Self‐Efficacy Predicts Perceptions of Infant Negative Temperament Characteristics, Not Vice Versa
10.1037/a0034263 · 2013 · External reference
The Amsterdam Cohort Studies on HIV Infection and AIDS
10.1097/00042560-199801001-00003 · 1998 · External reference
Unravelling the Impact of Ethnicity on Health in Europe: The HELIUS Study
10.1186/1471-2458-13-402 · 2013 · External reference
Cohort Profile: The Healthy Life in an Urban Setting (HELIUS) Study in Amsterdam, The Netherlands
10.1136/bmjopen-2017-017873 · 2017 · External reference
Cohort Profile Update: The Healthy Life in an Urban Setting (HELIUS) Study
10.1093/ije/dyaf071 · 2025 · External reference
Cohort Profile: The Hoorn Studies
10.1093/ije/dyx227 · 2018 · External reference
10.31234/osf.io/qcf4k_v1
10.31234/osf.io/qcf4k_v1 · External reference
The Longitudinal Aging Study Amsterdam: Cohort Update 2019 and Additional Data Collections
10.1007/s10654-019-00541-2 · 2020 · External reference
The Longitudinal Aging Study Amsterdam: Design and Cohort Update 2025
10.1007/s10654-025-01238-5 · 2025 · External reference
Cohort Profile: The Longitudinal Aging Study Amsterdam
10.1093/ije/dyq219 · 2011 · External reference
The Mood and Resilience in Offspring (MARIO) Project: A Longitudinal Cohort Study Among Offspring of Parents With and Without a Mood Disorder
10.1186/s12888-024-05555-z · 2024 · External reference
Netherlands Twin Register: A Focus on Longitudinal Research
10.1375/136905202320906174 · 2002 · External reference
Netherlands Twin Register: From Twins to Twin Families
10.1375/twin.9.6.849 · 2006 · External reference
The Netherlands Twin Register Biobank: A Resource for Genetic Epidemiological Studies
10.1375/twin.13.3.231 · 2010 · External reference
The Netherlands Twin Register: Longitudinal Research Based on Twin and Twin‐Family Designs
10.1017/thg.2019.93 · 2019 · External reference
Cohort Profile: Netherlands Longitudinal Study on Hearing (NL‐SH)
10.1136/bmjopen-2022-070180 · 2023 · External reference
Mixed‐Methods Psychosocial Autopsy Study of Suicide in Young and Middle‐Aged Individuals in the Netherlands
10.1136/bmjph-2024-001651 · 2025 · External reference
Rationale and Cross‐Sectional Study Design of the Research on Obesity and Type 2 Diabetes Among African Migrants: The RODAM Study
10.1136/bmjopen-2014-004877 · 2014 · External reference
Amsterdam Dementia Cohort: Performing Research to Optimize Care
10.3233/jad-170850 · 2018 · External reference
A European Network for the Investigation of Gender Incongruence: Endocrine Part
10.1016/j.jsxm.2016.03.371 · 2016 · External reference
The ENIGI (European Network for the Investigation of Gender Incongruence) Study: Overview of Acquired Endocrine Knowledge and Future Perspectives
10.3390/jcm11071784 · 2022 · External reference
The Hoorn Diabetes Care System (DCS) Cohort. A Prospective Cohort of Persons With Type 2 Diabetes Treated in Primary Care in the Netherlands
10.1136/bmjopen-2016-015599 · 2017 · External reference
Thalamus Structure and Function Determine Severity of Cognitive Impairment in Multiple Sclerosis
10.1212/wnl.0000000000001285 · 2015 · External reference
Increased Default‐Mode Network Centrality in Cognitively Impaired Multiple Sclerosis Patients
10.1212/wnl.0000000000003689 · 2017 · External reference
Cohort Profile of the Longitudinal Netherlands Study of Depression and Anxiety (NESDA) on Etiology, Course and Consequences of Depressive and Anxiety Disorders
10.1016/j.jad.2021.03.026 · 2021 · External reference
The Netherlands Study of Depression and Anxiety (NESDA): Rationale, Objectives and Methods
10.1002/mpr.256 · 2008 · External reference
The Netherlands Study of Depression in Older Persons (NESDO); a Prospective Cohort Study
10.1186/1756-0500-4-524 · 2011 · External reference
Advancing Interdisciplinary Research in Head and Neck Cancer Through a Multicenter Longitudinal Prospective Cohort Study: The NETherlands QUality of life and BIomedical Cohort (NET‐QUBIC) Data Warehouse and Biobank
10.1186/s12885-019-5866-z · 2019 · External reference
The Netherlands Obsessive Compulsive Disorder Association (NOCDA) Study: Design and Rationale of a Longitudinal Naturalistic Study of the Course of OCD and Clinical Characteristics of the Sample at Baseline
10.1002/mpr.1372 · 2012 · External reference
Cancer Risk in Children, Adolescents, and Young Adults Conceived by ART in 1983‐2011
10.1093/hropen/hoad027 · 2023 · External reference
Long‐Term Risk of Endometrial Cancer After Assisted Reproductive Technology
10.1093/humrep/deaf018 · 2025 · External reference
Returning Individual Research Results to Participants: Values, Preferences, and Expectations
10.1017/cts.2024.568 · 2024 · External reference
Navigating the Challenges of NT‐proBNP Result Disclosure in Clinical Research
10.1017/cts.2025.10114 · 2025 · External reference
Blurred Boundaries: Toward an Expanded Ethics of Research and Clinical Care
10.1080/15265161.2023.2224148 · 2023 · External reference
Return of Research Results (RoRR) to the Healthy CHRIS Cohort: Designing a Policy With the Participants
10.1007/s12687-021-00536-1 · 2021 · External reference
Communicating and Disseminating Research Findings to Study Participants: Formative Assessment of Participant and Researcher Expectations and Preferences
10.1017/cts.2020.9 · 2020 · External reference
Understanding What Information Is Valued by Research Participants, and Why
10.1377/hlthaff.2018.05046 · 2019 · External reference
Qualitative Study of Participants' Perceptions and Preferences Regarding Research Dissemination
10.1080/23294515.2017.1310146 · 2017 · External reference
“We're Checking Them Out”: Indigenous and Non‐Indigenous Research Participants' Accounts of Deciding to Be Involved in Research
10.1186/s12939-016-0301-4 · 2016 · External reference
Communicating Health Research With Plain Language
10.1177/00469580251357755 · 2025 · External reference
Health Researchers' Voluntary Science‐Communication With Non‐Academics: Motivations, Barriers, and Practices
10.3389/fcomm.2025.1564491 · 2025 · External reference
Return of Individual Research Results: What Do Participants Prefer and Expect?
10.1371/journal.pone.0254153 · 2021 · External reference
Returning Individual‐Level Urgent or Emergent Research Results to Participants: The Project Baseline Health Study Experience
10.1016/j.ajmo.2025.100092 · 2025 · External reference
A Multi‐Method Psychological Autopsy Study on Youth Suicides in the Netherlands in 2017: Feasibility, Main Outcomes, and Recommendations
10.1371/journal.pone.0238031 · 2020 · External reference
Is the Narrative the Message? The Relationship Between Suicide‐Related Narratives in Media Reports and Subsequent Suicides
10.1177/00048674221117072 · 2023 · External reference
Communicating Public Health Information to a Global Audience: An Evaluation of Methods to Overcome Barriers Using a Community‐Focussed Approach
10.1108/he-06-2023-0066 · 2025 · External reference
Participant Preferences for the Return of Non‐Genetic Research Results: An Interview Study of Participants From a Rheumatoid Arthritis Trial
10.1177/17470161251395759 · 2025 · External reference
Public Expectations for Return of Results From Large‐Cohort Genetic Research
10.1080/15265160802513093 · 2008 · External reference
Informing Study Participants of Research Results: An Ethical Imperative
10.2307/3564300 · 2003 · External reference
The Return of Biomarker Results in Research: Balancing Complexity, Precision, and Ethical Responsibility
10.3233/jad-230359 · 2024 · External reference
Getting Engaged
10.1007/s11606-014-2948-0 · 2014 · External reference
Achieving ‘Something That Everybody Has Invested In’: Perspectives of Diverse Stakeholders During Co‐Creation of a Transition to Residency Curriculum
10.1186/s12909-024-05573-1 · 2024 · External reference
Informing Retention in Longitudinal Cohort Studies Through a Social Marketing Lens: Raine Study Generation 2 Participants' Perspectives on Benefits and Barriers to Participation
10.1186/s12874-020-01074-z · 2020 · External reference
