Research graph
References from Caregiving and Respite for People With Motor Neurone Disease: A National Cross‐Sectional Survey of Experiences and Challenges. Local targets link to admitted publications; unresolved targets remain external evidence.
Motor Neurone Disease Family Carers' Experiences of Caring, Palliative Care and Bereavement: An Exploratory Qualitative Study
10.1177/0269216311416036 · 2012 · External reference
Grief, Depression, and Anxiety in Bereaved Caregivers of People With Motor Neurone Disease: A Population‐Based National Study
10.1080/21678421.2020.1790610 · 2020 · External reference
Unresolved reference
External reference
The ALSFRS‐R: A Revised ALS Functional Rating Scale That Incorporates Assessments of Respiratory Function
10.1016/s0022-510x(99)00210-5 · 1999 · External reference
Caregiver Time Use in ALS
10.1212/01.wnl.0000233840.41688.df · 2006 · External reference
Unresolved reference
2026 · External reference
Unresolved reference
External reference
Needs of Informal Caregivers Across the Caregiving Course in Amyotrophic Lateral Sclerosis: A Qualitative Analysis
10.1136/bmjopen-2017-018721 · 2018 · External reference
Time From Amyotrophic Lateral Sclerosis Symptom Onset to Key Disease Milestones: Analysis of Data From a Multinational Cross‐Sectional Survey
10.1080/21678421.2023.2297795 · 2024 · External reference
Patients' Self‐Perceived Burden, Caregivers' Burden and Quality of Life for Amyotrophic Lateral Sclerosis Patients: A Cross‐Sectional Study
10.1111/jocn.13667 · 2017 · External reference
Unresolved reference
2022 · External reference
Unresolved reference
2019 · External reference
Complicated Grief: Risk Factors, Protective Factors, and Interventions
10.1080/15524256.2020.1745726 · 2020 · External reference
Activities of Daily Living in Motor Neuron Disease: Role of Behavioural and Motor Changes
10.1016/j.jocn.2011.07.042 · 2012 · External reference
New Developments in the Diagnosis and Management of Motor Neuron Disease
10.1093/bmb/ldae010 · 2024 · External reference
Supportive Care Needs of Patients With Amyotrophic Lateral Sclerosis/Motor Neuron Disease and Their Caregivers: A Scoping Review
10.1111/jocn.13945 · 2017 · External reference
Update on Recent Advances in Amyotrophic Lateral Sclerosis
10.1007/s00415-024-12435-9 · 2024 · External reference
Caregiver Experience, Health‐Related Quality of Life and Life Satisfaction Among Informal Caregivers to Patients With Amyotrophic Lateral Sclerosis: A Cross‐Sectional Study
10.1111/jocn.14593 · 2018 · External reference
Disability and Contextual Factors in Patients With Amyotrophic Lateral Sclerosis ‐ A Three‐Year Observational Study
10.3233/jnd-180322 · 2018 · External reference
Healthcare Resource Utilization at Different Stages of Amyotrophic Lateral Sclerosis: Results From a Real‐World Survey
10.1016/j.jns.2023.120764 · 2023 · External reference
Unresolved reference
2022 · External reference
Factors Associated With Grief in Informal Carers of People Living With Motor Neuron Disease: A Mixed Methods Systematic Review
10.1080/07481187.2023.2191351 · 2024 · External reference
The Impact of Respite Care From the Perspectives and Experiences of People With Amyotrophic Lateral Sclerosis and Their Care Partners: A Qualitative Study
10.1186/s12904-022-00919-2 · 2022 · External reference
Needs of Persons Living With ALS at Home and Their Family Caregivers: A Scoping Review
10.1002/mus.27849 · 2023 · External reference
In‐Home Respite Care in Dementia: An Evolutionary Concept Analysis
10.1016/j.ijnss.2025.06.010 · 2025 · External reference
Experiences and Needs of Caregivers of Community‐Dwelling Frail Older Adults: A Mixed Methods Systematic Review
10.1111/jocn.17799 · 2025 · External reference
