Contact and support
Need help, have a question, or want to contact the ResearchHub team?
© 2026 ResearchHub. Built for responsible scholarly connection.
Privacy-aware community infrastructureResearch graph
References from Record linkage of population-based cohort data from minors with national register data: a scoping review and comparative legal analysis of four European countries. Local targets link to admitted publications; unresolved targets remain external evidence.
Health Services Research and Data Linkages: Issues, Methods, and Directions for the Future.
10.1111/j.1475-6773.2010.01142.x · 2010 · External reference
Gordis Epidemiology.
2018 · External reference
The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies.
10.1016/j.jclinepi.2007.11.008 · 2008 · External reference
Observational Studies: Cohort and Case-Control Studies.
10.1097/prs.0b013e3181f44abc · 2010 · External reference
Life-Course relationship between socioeconomic circumstances and timing of first birth in a birth cohort.
10.1371/journal.pone.0170170 · 2017 · External reference
Impact of socio-economic status on hospital length of stay following injury: A multicenter cohort study.
10.1186/s12913-015-0949-2 · 2015 · External reference
A population-based approach for implementing change from opt-out to opt-in research permissions.
10.1371/journal.pone.0168223 · 2017 · External reference
Government registries containing sensitive health data and the implementation of EU directive on the protection of personal data in Finland.
2002 · External reference
Medical record linkage of anonymous registries without validated sample linkage of the dutch perinatal registries.
2005 · External reference
Introduction to EVIPNet Europe: Conceptual background and case studies.
2017 · External reference
Administrative record linkage as a tool for public health research.
10.1146/annurev-publhealth-031210-100700 · 2011 · External reference
Assessing data linkage quality in cohort studies.
10.1080/03014460.2020.1742379 · 2020 · External reference
The RECORD reporting guidelines: meeting the methodological and ethical demands of transparency in research using routinely-collected health data.
10.2147/clep.s110528 · 2016 · External reference
Annals of Human Biology Assessing data linkage quality in cohort studies.
10.1080/03014460.2020.1742379 · 2020 · External reference
Approach to record linkage of primary care data from Clinical Practice Research Datalink to other health-related patient data : overview and implications.
10.1007/s10654-018-0442-4 · 2019 · External reference
Record Linkage in Health Data : a simulation study.
2014 · External reference
Administrative Record Linkage as a Tool for Public Health Research.
10.1146/annurev-publhealth-031210-100700 · 2011 · External reference
Record linkage for health studies : three demonstration projects.
2015 · External reference
Technical challenges of providing record linkage services for research.
10.1186/1472-6947-14-23 · 2014 · External reference
Electronic Health Records: Then, Now, and in the Future.
10.15265/iys-2016-s006 · 2016 · External reference
Linking health and education data to plan and evaluate services for children.
10.1136/archdischild-2016-311656 · 2017 · External reference
Creating a Population-based Linked Health Database: A New Resource for Health Services Research
10.1007/bf03403934 · 1998 · External reference
Health Equity Talk: Understandings of Health Equity among Health Leaders.
10.3934/publichealth.2017.5.490 · 2017 · External reference
PROVISION OF PERSONAL AND NON-PERSONAL HEALTH SERVICES : PROPOSAL FOR MONITORING
External reference
Directive 2002/58/EC of the European Parliament and of the Council.
2002 · External reference
REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL concerning the respect for private life and the protection of personal data in electronic communications and repealing Directive 2002/58/EC (Regulation on Privacy and Electronic Communications)
2017 · External reference
Report on the implementation of specific provisions of Regulation.
2016 · External reference
Data protection and the processing of personal data of very preterm (VPT) and very low birth weight (VLBW) children for scientific health research.
10.24840/2182-9845_2019-0003_0005 · 2019 · External reference
Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate.
10.1016/j.ejca.2018.09.032 · 2018 · External reference
EU General Data Protection Regulation (GDPR): Regulation (EU) 2016/679.
External reference
Will the trilogue on the EU Data Protection Regulation recognise the importance of health research?
10.1093/eurpub/ckv149 · 2015 · External reference
GDPR and research
2017 · External reference
Helsinki Declaration
2021 · External reference
Record linkage of routine data with cohorts’ data of infants under European and Portuguese law.
10.1093/eurpub/ckaa166.178 · 2020 · External reference
How the General Data Protection Regulation changes the rules for scientific research
2019 · External reference
Information Commissioner’s office
2021 · External reference
Handbook on European data protection law 2018 edition
2018 · External reference
Finnish Information Centre for Register Research
2020 · External reference
Institute for Health and Welfare (THL)
2020 · External reference
Findata
2020 · External reference
The Act on the Secondary Use of Health and Social Data
2019 · External reference
REK
2020 · External reference
Your research: Is it subject to the WMO or not
2021 · External reference
Gedragscode Gezondheidsonderzoek
2004 · External reference
Medisch data-onderzoek in het AVG-tijdperk: een zoektocht naar de juiste regels.
10.5553/tvgr/016508742020044002004 · 2020 · External reference
Niet-WMO-plichtig onderzoek en ethische toetsing
2020 · External reference
The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital Era.
10.1177/1073110518822003 · 2018 · External reference
Are ‘pseudonymised‘ data always personal data? Implications of the GDPR for administrative data research in the UK.
10.1016/j.clsr.2018.01.002 · 2018 · External reference
How the best-laid plans go awry: the (unsolved) issues of applicable law in the General Data Protection Regulation.
10.1093/idpl/ipw020 · 2016 · External reference
Commission and Germany’s Presidency of the Council of the EU underline importance of the European Health Data Space
2020 · External reference
European Commission Conducts Open Consultation on the European Health Data Space Initiative
2021 · External reference
What is personal data?
External reference
Health research, consent and the GDPR exemption.
10.1163/15718093-12262427 · 2019 · External reference
Should consent for data processing be privileged in health research? A comparative legal analysis.
10.1093/idpl/ipz023 · 2020 · External reference
Informed consent and cultural diversity.
2006 · External reference
Cultural aspects related to informed consent in health research: A systematic review.
10.1177/0969733015579312 · 2016 · External reference
Practical application of opt-out recruitment methods in two health services research studies.
10.1186/s12874-017-0333-5 · 2017 · External reference
Opt-out as an acceptable method of obtaining consent in medical research: A short report.
10.1186/1471-2288-11-40 · 2011 · External reference
Understanding participation in European cohort studies of preterm children: the views of parents, healthcare professionals and researchers.
10.1186/s12874-020-01206-5 · 2021 · External reference
Improving Understanding of participation and attrition phenomena in European Cohort Studies: Protocol for a Multi-situated Qualitative Study.
10.2196/14997 · 2020 · External reference
Completeness of Retention Data and Determinants of Attrition in Birth Cohorts of Very Preterm Infants: A Systematic Review.
10.3389/fped.2021.529733 · 2021 · External reference
Cardiovascular News - Shivan J Mehta, An ‘opt-out’ approach may encourage more patient participation in research
2016 · External reference
Participation Rates in Epidemiologic Studies.
10.1016/j.annepidem.2007.03.013 · 2007 · External reference
The rise and fall of an opt-out system.
10.1177/1403494817745189 · 2020 · External reference
What is Gillick competence?
10.1080/21645515.2015.1091548 · 2016 · External reference
Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation.
10.1038/s41431-017-0045-7 · 2018 · External reference
General Data Protection Regulation (GDPR) and implications for research.
10.1016/j.maturitas.2018.01.017 · 2018 · External reference
The Mental Capacity Act 2005 and mature minors: A missed opportunity?
10.1080/09649069.2011.617073 · 2011 · External reference
Capacity assessment under the mental capacity act 2005: Delivering on the functional approach?
10.1111/j.1748-121x.2009.00133.x · 2009 · External reference
Common challenges faced in EU-funded projects on integrated care for vulnerable persons.
10.5334/ijic.3104 · 2017 · External reference
Ethics and data protection.
2018 · External reference
Huge variation in obtaining ethical permission for a non-interventional observational study in Europe.
10.1186/s12910-019-0373-y · 2019 · External reference
What is the role of ethics committees after Regulation (EU) 536/2014?
10.1136/medethics-2015-103028 · 2016 · External reference
Expert perspectives on ethics review of international data-intensive research: Working towards mutual recognition.
10.1177/1747016117711972 · 2018 · External reference
Ethics review as a component of institutional approval for a multicentre continuous quality improvement project: The investigator’s perspective.
10.1186/1472-6963-10-223 · 2010 · External reference
Research ethics committees: Need for harmonization at the national level, the global and Indian perspective.
10.4103/2229-3485.128022 · 2014 · External reference
RECAP preterm.
2021 · External reference
Nordic registry-based cohort studies: Possibilities and pitfalls when combining Nordic registry data.
10.1177/1403494817702336 · 2017 · External reference
Norwegian Health Registry.
2020 · External reference
Matching survey responses with anonymity in environments with privacy concerns: A practical guide.
2010 · External reference
Using global unique identifiers to link autism collections.
10.1136/jamia.2009.002063 · 2010 · External reference
Security and Privacy Impacts of a Unique Personal Identifier.
2016 · External reference
Probabilistic record linkage of de-identified research datasets with discrepancies using diagnosis codes.
10.1038/sdata.2018.298 · 2019 · External reference
The policy effect of the general data protection regulation (GDPR) on the digital public health sector in the european union: An empirical investigation.
10.3390/ijerph16061070 · 2019 · External reference
Developing and implementing national health identifiers in resource limited countries: why what, who when and how?
10.1080/16549716.2018.1440782 · 2018 · External reference
Examining the power of the social imaginary through competing narratives of data ownership in health research.
10.1093/jlb/lsaa068 · 2021 · External reference
How the writers of case reports need to consider and address consent and the General Data Protection Regulation (GDPR).
10.1016/j.crwh.2018.e00060 · 2018 · External reference
The critical success factors of GDPR implementation: a systematic literature review.
2019 · External reference
Conclusion: harmonisation in genomic and health data sharing for research: an impossible dream?
10.1007/s00439-018-1924-x · 2018 · External reference
The impact of the general data protection regulation on health research.
10.1093/bmb/ldy038 · 2018 · External reference
