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References from An agenda-setting paper on data sharing platforms: euCanSHare workshop. Local targets link to admitted publications; unresolved targets remain external evidence.
Quality, quantity and harmony: The DataSHaPER approach to integrating data across bioclinical studies.
10.1093/ije/dyq139 · 2010 · External reference
Toward a roadmap in global biobanking for health.
10.1038/ejhg.2012.96 · 2012 · External reference
Biobanks in Europe: Prospects for Harmonisation and Networking
2010 · External reference
Sharing research data to improve public health.
10.1016/s0140-6736(10)62234-9 · 2011 · External reference
Hidden concerns of sharing research data by low/middle-income country scientists.
10.1080/11287462.2018.1441780 · 2018 · External reference
Enabling Sharing and Reuse of Scientific Data.
10.1080/13614576.2014.883936 · 2014 · External reference
Global perspectives of research data sharing: A systematic literature review.
10.1016/j.lisr.2019.04.004 · 2019 · External reference
Comment: The FAIR Guiding Principles for scientific data management and stewardship.
10.1038/sdata.2016.18 · 2016 · External reference
Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health.
10.1089/bio.2017.0110 · 2018 · External reference
The “A” of FAIR - As Open as Possible, as Closed as Necessary.
10.1162/dint_a_00027 · 2020 · External reference
Regulation 2016/679 of the European Parliament and the Council of the European Union.
2016 · External reference
Cost of not having FAIR research data: Cost-Benefit analysis for FAIR research data
2018 · External reference
Data model harmonization for the All Of Us Research Program: Transforming i2b2 data into the OMOP common data model.
10.1371/journal.pone.0212463 · 2019 · External reference
Transforming and evaluating electronic health record disease phenotyping algorithms using the OMOP common data model: a case study in heart failure.
10.1093/jamiaopen/ooab001 · 2021 · External reference
DataSHIELD: taking the analysis to the data, not the data to the analysis.
10.1093/ije/dyu188 · 2014 · External reference
Business Models for Sustainable Data Repositories.
10.1787/302b12bb-en · 2017 · External reference
Networked research infrastructures and their governance: The case of biobanking.
10.1093/scipol/scs033 · 2012 · External reference
EU-funded initiatives for real world evidence: descriptive analysis of their characteristics and relevance for regulatory decision-making.
10.1136/bmjopen-2018-021864 · 2018 · External reference
Open Science, Open Data, and Open Scholarship: European Policies to Make Science Fit for the Twenty-First Century.
10.3389/fdata.2019.00043 · 2019 · External reference
Policy Recommendations: Cost-Benefit analysis for FAIR research data
2018 · External reference
Model organism databases: Essential resources that need the support of both funders and users.
10.1186/s12915-016-0276-z · 2016 · External reference
Towards a European health research and innovation cloud (HRIC).
10.1186/s13073-020-0713-z · 2020 · External reference
BBMRI-ERIC as a resource for pharmaceutical and life science industries: The development of biobank-based Expert Centres.
10.1038/ejhg.2014.235 · 2015 · External reference
National biobanks: Clinical labor, risk production, and the creation of biovalue.
10.1177/0162243909340267 · 2010 · External reference
Understanding public reactions to commercialization of biobanks and use of biobank resources.
10.1016/j.socscimed.2016.06.028 · 2016 · External reference
Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research.
10.1371/journal.pone.0221496 · 2019 · External reference
Transnational access to large prospective cohorts in Europe: Current trends and unmet needs.
10.1016/j.nbt.2018.10.001 · 2019 · External reference
From the principles of genomic data sharing to the practices of data access committees.
10.15252/emmm.201405002 · 2015 · External reference
Questions for Artificial Intelligence in Health Care.
10.1001/jama.2018.18932 · 2019 · External reference
Stakeholders’ views on data sharing in multicenter studies.
10.2217/cer-2017-0009 · 2017 · External reference
Health research access to personal confidential data in England and Wales: assessing any gap in public attitude between preferable and acceptable models of consent.
10.1186/s40504-014-0015-6 · 2014 · External reference
"Let's get the best quality research we can": public awareness and acceptance of consent to use existing data in health research: a systematic review and qualitative study.
10.1186/1471-2288-13-72 · 2013 · External reference
Attitudes of research participants and the general public towards genomic data sharing: A systematic literature review.
10.1586/14737159.2014.961917 · 2014 · External reference
Systematic review of participants’ attitudes towards data sharing: A thematic synthesis.
10.1177/1355819617751555 · 2018 · External reference
“Giving something back”: A systematic review and ethical enquiry into public views on the use of patient data for research in the United Kingdom and the Republic of Ireland [version 2; referees: 2 approved].
10.12688/wellcomeopenres.13531.2 · 2019 · External reference
Acceptability and perceived barriers and facilitators to creating a national research register to enable “direct to patient” enrolment into research: the Scottish Health Research Register (SHARE).
10.1186/1472-6963-13-422 · 2013 · External reference
The One-Way Mirror: Public attitudes to commercial access to health data.
2016 · External reference
The Impact of Commercialisation and Genetic Data Sharing Arrangements on Public Trust and the Intention to Participate in Biobank Research.
10.1159/000375441 · 2015 · External reference
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.
10.1038/ejhg.2012.104 · 2013 · External reference
Wellcome Global Monitor: How does the world feel about science and health?
2019 · External reference
Identifying the nature and extent of public and donor concern about the commercialisation of biobanks for genomic research.
10.1038/s41431-020-00746-0 · 2021 · External reference
Privatizing biomedical research-a 'third way'.
10.1038/nbt0108-31 · 2008 · External reference
Benefit sharing and biobanking in Australia.
10.1177/0963662511402425 · 2012 · External reference
Foundations of Fairness: Where next for NHS health data partnerships
2020 · External reference
Public deliberation in the use of health and care data.
2020 · External reference
Public views on sharing anonymised patient-level data where there is a mixed public and private benefit.
2019 · External reference
Mutual Learning Exercise : Open Science – Altmetrics and Rewards Incentives and Rewards to engage in Open Science Activities.
2017 · External reference
Mutual Learning Exercise : Open Science – Altmetrics and Rewards Implementing Open Science: Strategies , Experiences and Models.
2017 · External reference
Open Science and its role in universities : A roadmap for cultural change.
2018 · External reference
Progress on Open Science: Towards a Shared Research Knowledge System.
2020 · External reference
Mutual Learning Exercise : Open Science - Altmetrics and Rewards: How to use altmetrics in the context of Open Science
2017 · External reference
Mutual Learning Exercise : Open Science - Altmetrics and Rewards: Different types of Altmetrics
2017 · External reference
Evaluation of Research Careers fully acknowledging Open Science Practices
2017 · External reference
Governance of Data Access
2015 · External reference
Establishing Incentives and Changing Cultures To Support
2014 · External reference
Indicator Frameworks for Fostering Open Knowledge Practices in Science and Scholarship
10.2777/445286 · 2019 · External reference
The metric tide : report of the Independent Review of the Role of Metrics in Research Assessment and Management
10.4135/9781473978782 · 2015 · External reference
Bibliometrics: The Leiden Manifesto for research metrics.
10.1038/520429a · 2015 · External reference
Data Sharing.
10.1056/nejme1516564 · 2016 · External reference
Hyperauthorship: A postmodern perversion or evidence of a structural shift in scholarly communication practices?
10.1002/asi.1097 · 2001 · External reference
Global Research Report Multi-authorship and research analytics
2019 · External reference
Evaluating Academic Scientists Collaborating in Team-Based Research: A Proposed Framework.
10.1097/acm.0000000000000759 · 2015 · External reference
When authorship fails. A proposal to make contributors accountable.
10.1001/jama.278.7.579 · 1997 · External reference
The rise of the middle author: Investigating collaboration and division of labor in biomedical research using partial alphabetical authorship.
10.1371/journal.pone.0184601 · 2017 · External reference
How can we ensure visibility and diversity in research contributions? How the Contributor Role Taxonomy (CRediT) is helping the shift from authorship to contributorship.
10.1002/leap.1210 · 2019 · External reference
Authorship order.
10.1002/leap.1191 · 2018 · External reference
Transparency in authors’ contributions and responsibilities to promote integrity in scientific publication.
10.1073/pnas.1715374115 · 2018 · External reference
Authorship and contribution disclosures.
10.1126/sciadv.1700404 · 2017 · External reference
Bringing Citations and Usage Metrics Together to Make Data Count.
10.5334/dsj-2019-009 · 2019 · External reference
Open Data Metrics: Lighting the Fire
10.5281/zenodo.3525349 · 2018 · External reference
Towards new tools for bioresource use and sharing.
10.3233/isu-160811 · 2016 · External reference
The Value of Research Data Metrics for datasets from a cultural and technical point of view
2013 · External reference
Data sharing platforms and the academic evaluation system.
10.15252/embr.202050690 · 2020 · External reference
Data sharing in the post-genomic world: The experience of the international cancer genome consortium (ICGC) data access compliance office (DACO).
10.1371/journal.pcbi.1002549 · 2012 · External reference
New models of collaboration in genome-wide association studies: the Genetic Association Information Network.
10.1038/ng2127 · 2007 · External reference
Data use under the NIH GWAS data sharing policy and future directions.
10.1038/ng.3062 · 2014 · External reference
Registered access: a “Triple-A” approach.
10.1038/ejhg.2016.115 · 2016 · External reference
Controlled Access under Review: Improving the Governance of Genomic Data Access.
10.1371/journal.pbio.1002339 · 2015 · External reference
Better governance, better access: Practising responsible data sharing in the METADAC governance infrastructure.
10.1186/s40246-018-0154-6 · 2018 · External reference
Analysis of five years of controlled access and data sharing compliance at the International Cancer Genome Consortium.
10.1038/ng.3499 · 2016 · External reference
Responsible sharing of biomedical data and biospecimens via the “Automatable Discovery and Access Matrix” (ADA-M).
10.1038/s41525-018-0057-4 · 2018 · External reference
Consent Codes: Upholding Standard Data Use Conditions.
10.1371/journal.pgen.1005772 · 2016 · External reference
On the Design of a Blockchain-Based System to Facilitate Healthcare Data Sharing.
10.1109/trustcom/bigdatase.2018.00190 · External reference
