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References from A tool to evaluate the impact of lived experience involvement in research: the Brain and Genomics Hub Impact Log protocol.. Local targets link to admitted publications; unresolved targets remain external evidence.
Guidance on co-producing a research project.
External reference
Embedding lived experience into mental health academic research organizations: Critical reflections.
10.1111/hex.13586 · 2022 · External reference
Public Participation in Health and Social Care: Exploring the Co-production of Knowledge.
10.3389/fsoc.2018.00041 · 2019 · External reference
Survivor research and Mad Studies: the role and value of experiential knowledge in mental health research.
10.1080/09687599.2017.1302320 · 2017 · External reference
Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.
10.1186/s12888-025-07120-8 · 2025 · External reference
Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.
10.1093/pubmed/fdz126 · 2019 · External reference
Reporting lived experience work.
10.1016/s2215-0366(23)00402-9 · 2024 · External reference
Beyond tokenism: the influence of lived experience and its future possibilities in mental health science.
10.1038/s44220-023-00027-x · 2023 · External reference
Service user's actual involvement in mental health research practices: A scoping review.
10.1111/inm.12594 · 2019 · External reference
Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.
10.1111/hex.12888 · 2019 · External reference
Editorial: Introducing The Lions Write Journal: Journal of first-person voice on lived, first-hand experience & tacit knowledge in managing chronic health conditions.
2025 · External reference
Understanding the identity of lived experience researchers and providers: a conceptual framework and systematic narrative review.
10.1186/s40900-023-00439-0 · 2023 · External reference
Beyond the methodological binary: coproduction as the third pillar of mental health science.
10.1136/bmjment-2025-301807 · 2025 · External reference
What Do We Know About Sharing Power in Co-Production in Mental Health Research? A Systematic Review and Thematic Synthesis.
10.1111/hex.70014 · 2024 · External reference
Singapore's Mental Health Peer Movement.
10.1177/13634615251409682 · 2026 · External reference
National Survivor User Network.
2025 · External reference
Epistemic injustice and mental health research: A pragmatic approach to working with lived experience expertise.
10.3389/fpsyt.2023.1114725 · 2023 · External reference
Embracing dissensus in lived experience research: the power of conflicting experiential knowledge.
10.1016/s2215-0366(25)00003-3 · 2025 · External reference
Participatory research: real or imagined.
10.1007/s00127-018-1549-3 · 2018 · External reference
Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.
10.1186/s40900-023-00442-5 · 2023 · External reference
Lived Experience, Research Leadership, and the Transformation of Mental Health Services: Building a Researcher Pipeline.
10.1176/appi.ps.202000468 · 2021 · External reference
Mapping the impact of patient and public involvement on health and social care research: a systematic review.
10.1111/j.1369-7625.2012.00795.x · 2014 · External reference
Lived experience and family engagement in psychiatry research: A scoping review of reviews.
10.1111/hex.14057 · 2024 · External reference
Activity and views of service users involved in mental health research: UK survey.
10.1192/bjp.bp.113.128637 · 2014 · External reference
Gaps in the Engagement of People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Health Research: A Qualitative Study of Untapped Potential.
10.1111/hex.70393 · 2025 · External reference
Patient engagement in research: a systematic review.
10.1186/1472-6963-14-89 · 2014 · External reference
Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications.
10.1186/s40900-023-00424-7 · 2023 · External reference
Exploring the involvement of people with lived experience of mental disorders in co-developing outcome measures: a systematic review.
10.1016/s2215-0366(24)00376-6 · 2025 · External reference
Considerations for supporting meaningful stakeholder engagement in global mental health research.
10.1017/s204579602200035x · 2022 · External reference
Centering lived experience within psychiatric genetic and genomic research at the National Institute of Mental Health.
10.1038/s44220-026-00591-y · 2026 · External reference
Breaking barriers: centering researchers with lived experience in psychiatric neuroscience.
10.1038/s44277-025-00048-7 · 2025 · External reference
The Public Involvement Impact Assessment Framework Guidance.
2014 · External reference
The snakes and ladders of user involvement: Moving beyond Arnstein.
10.1016/j.healthpol.2005.05.008 · 2006 · External reference
Strengthening Review and Publication of Participatory Mental Health Research to Promote Empowerment and Prevent Co-optation.
10.1176/appi.ps.20220085 · 2023 · External reference
A systematic scoping review exploring how people with lived experience have been involved in prison and forensic mental health research.
10.1002/cbm.2324 · 2024 · External reference
No decision about me, without me: Collaborating with young people in mental health research.
10.1002/jcv2.12291 · 2024 · External reference
Co-producing rapid research: Strengths and challenges from a lived experience perspective.
10.3389/fsoc.2023.996585 · 2023 · External reference
Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.
10.1111/hex.13779 · 2023 · External reference
Impact of involvement in mental health professional education on patient educators: a qualitative systematic review.
10.1136/bmjopen-2024-084314 · 2024 · External reference
10.1186/s40900-015-0008-5 · 2015 · Admitted local publication
'The missing links': understanding how context and mechanism influence the impact of public involvement in research.
10.1111/hex.12017 · 2014 · External reference
Synthesising quantitative and qualitative evidence to inform guidelines on complex interventions: clarifying the purposes, designs and outlining some methods.
10.1136/bmjgh-2018-000893 · 2019 · External reference
Guidance on the conduct of narrative synthesis in systematic reviews.
2006 · External reference
Using thematic analysis in psychology.
10.1191/1478088706qp063oa · 2006 · External reference
Prevalence of multimorbidity in people with and without severe mental illness: a systematic review and meta-analysis.
10.1016/s2215-0366(24)00091-9 · 2024 · External reference
Prevalence of severe mental illness among people in prison across 43 countries: a systematic review and meta-analysis.
10.1016/s2468-2667(24)00280-9 · 2025 · External reference
Global, regional, and national burden of 12 mental disorders in 204 countries and territories, 1990-2019: a systematic analysis for the Global Burden of Disease Study 2019.
10.1016/s2215-0366(21)00395-3 · 2022 · External reference
Biomarkers in psychiatric disorders: status quo, impediments and facilitators.
10.1002/wps.21071 · 2023 · External reference
Rethinking the studies of diagnostic biomarkers for mental disorders.
10.1016/j.metrad.2025.100135 · 2025 · External reference
The characteristics of mental disorders diagnosis: Current status and challenges.
10.1016/j.ajp.2025.104492 · 2025 · External reference
Transdiagnostic findings across major depressive disorder, bipolar disorder and schizophrenia: A qualitative review.
10.1016/j.jad.2025.119464 · 2025 · External reference
Lived experience research: recognition of dual expertise.
10.1016/s2215-0366(26)00057-x · 2026 · External reference
WHO.
2025 · External reference
Extended Materials. “A Tool to Evaluate the Impact of Lived Experience Involvement in Research: The Brain and Genomics Hub Impact Log Protocol. [Extended Materials].
2026 · External reference
A tool to evaluate the impact of lived experience involvement in research: the Brain and Genomics Hub Impact Log Protocol.
2026 · External reference