Research graph
References from Navigating family life with Hypoplastic Left Heart Syndrome: A qualitative study. Local targets link to admitted publications; unresolved targets remain external evidence.
Report of the New England Regional Infant Cardiac Program, by Donald C. Fyler, MD, Pediatrics, 1980;65(suppl):375–461
10.1542/peds.102.s1.258 · 1998 · External reference
Prevalence, treatment, and outcome of heart disease in live-born children: A prospective analysis of 91,823 live-born children
10.1007/bf02083294 · 1989 · External reference
Hypoplastic Left Heart Syndrome: Natural History in a Geographically Defined Population
10.1542/peds.85.6.977 · 1990 · External reference
Congenital heart disease: prevalence at livebirth. The Baltimore-Washington Infant Study
10.1093/oxfordjournals.aje.a113979 · 1985 · External reference
Hypoplastic Left Heart Syndrome: A New Paradigm for an Old Disease?
10.3390/jcdd6010010 · 2019 · External reference
Long-term survival, modes of death, and predictors of mortality in patients with Fontan surgery
10.1161/circulationaha.107.738559 · 2008 · External reference
Resource and cost considerations in treating hypoplastic left heart syndrome
10.2147/phmt.s98327 · 2016 · External reference
Survival of Children With Hypoplastic Left Heart Syndrome
10.1542/peds.2014-1427 · 2015 · External reference
Hypoplastic left heart syndrome: From bedside to bench and back
10.1016/j.yjmcc.2019.08.005 · 2019 · External reference
Outcome after a "perfect" Fontan operation
10.1161/01.cir.81.5.1520 · 1990 · External reference
Parents’ perceptions during the transition to home for their child with a congenital heart defect: How can we support families of children with hypoplastic left heart syndrome?
10.1111/jspn.12185 · 2017 · External reference
Management of Hypoplastic Left Heart Syndrome in Low-Resource Settings and the Ethics of Decision-Making
10.1177/21501351221103511 · 2022 · External reference
Caring for a Child with Hypoplastic Left Heart Syndrome: Parent and Medical Perspective
10.1007/s40119-021-00246-2 · 2022 · External reference
Identifying gaps in parental support for families of children with hypoplastic left heart syndrome
10.1017/s1047951121001736 · 2022 · External reference
Psychosocial experiences of parents of infants with hypoplastic left heart syndrome in the PICU
10.1097/pcc.0b013e31829b1a88 · 2013 · External reference
Psychosocial impact on families with an infant with a hypoplastic left heart syndrome during and after the interstage monitoring period—a prospective mixed-method study
10.1111/jocn.13694 · 2017 · External reference
Parental Vigilance in Caring for Their Children with Hypoplastic Left Heart Syndrome
2015 · External reference
Hypoplastic left heart syndrome: parent support for early decision making
10.1016/j.pedn.2012.11.005 · 2013 · External reference
Psychosocial responses of parents to their infant’s diagnosis of hypoplastic left heart syndrome
10.1017/s1047951114001590 · 2015 · External reference
Parenting under pressure: a grounded theory of parenting young children with life-threatening congenital heart disease
10.1111/j.1365-2648.2012.06044.x · 2013 · External reference
Transition experiences between hospital- and home-care for parents of children with hypoplastic left heart syndrome
10.1111/jspn.12225 · 2018 · External reference
The Relationship of Family Factors to Psychosocial Outcomes in Children with Hypoplastic Left Heart Syndrome at 6
2023 · External reference
Setting a New Standard: The Person-Centered Interviewing and Observation of Robert I. Levy
10.1525/eth.2005.33.4.459 · 2005 · External reference
Unresolved reference
2014 · External reference
The emergence of biomedical anthropology and its implications for the future
10.1002/ajpa.1330640207 · 1984 · External reference
How medicine constructs its objects
1994 · External reference
10.1525/california/9780520209657.001.0001
10.1525/california/9780520209657.001.0001 · 1997 · External reference
An Analytical Framework for Contrasting Patient and Provider Views of the Process of Chronic Disease Management
10.1525/maq.2001.15.3.347 · 2001 · External reference
Unresolved reference
2017 · External reference
Toward a Phenomenology of Boundaries in Medicine: Chronic Illness Experience in the Case of Stroke
10.1525/maq.1988.2.4.02a00040 · 1988 · External reference
Culture, Illness, and Care
10.7326/0003-4819-88-2-251 · 1978 · External reference
Using thematic analysis in psychology
10.1191/1478088706qp063oa · 2006 · External reference
Unresolved reference
1998 · External reference
10.1002/9781405165518.wbeosg070.pub2
10.1002/9781405165518.wbeosg070.pub2 · External reference
Thematic analysis of qualitative data: AMEE Guide No. 131
10.1080/0142159x.2020.1755030 · 2020 · External reference
10.4135/9781483384511
10.4135/9781483384511 · 2012 · External reference
The need for a new medical model: a challenge for biomedicine
10.1126/science.847460 · 1977 · External reference
Viewpoint: critical perspectives on the biomedical model
1981 · External reference
On illness meanings and clinical interpretation: Not ’rational man’, but a rational approach to man the sufferer/man the healer
10.1007/bf00054781 · 1981 · External reference
Unresolved reference
1995 · External reference
Unresolved reference
2019 · External reference
10.1525/9780520354722
10.1525/9780520354722 · 1994 · External reference
10.7551/mitpress/14504.001.0001
10.7551/mitpress/14504.001.0001 · 2023 · External reference
