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References from Listening to children with lower limb loss: Rationale, design, and protocol for delivery of a novel globally applicable research toolkit—Prosthetic user needs, quality of life, pain, and physical function. Local targets link to admitted publications; unresolved targets remain external evidence.
Unresolved reference
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Product Narrative: Prostheses, AT2030 programme & ATscale Global Partnership for Assistive Technology.
2020 · External reference
Unresolved reference
2019 · External reference
Retrospective observational study of characteristics of persons with amputations accessing International Committee of the Red Cross (ICRC) rehabilitation centres in five conflict and postconflict countries.
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10.1016/j.pmr.2005.10.002 · 2006 · External reference
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2022 · External reference
Listening to youth voices: a call for essays by young people.
10.1016/s2352-4642(23)00131-1 · 2023 · External reference
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10.1371/journal.pone.0273784 · 2022 · External reference
Unresolved reference
2023 · External reference
Steps to engaging young children in research: Volume 2: The researcher toolkit.
2014 · External reference
Issues Faced by Prosthetists and Physiotherapists During Lower-Limb Prosthetic Rehabilitation: A Thematic Analysis.
10.3389/fresc.2021.795021 · 2021 · External reference
A Focus Group Study to Understand the Perspectives of Physiotherapists on Barriers and Facilitators to Advancing Rehabilitation in Low-Resource and Conflict Settings.
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A survey of physiotherapists involved in paediatric lower limb amputee rehabilitation in the British Isles.
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Priorities in lower limb prosthetic service delivery based on an international survey of prosthetists in low- and high-income countries
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Design and quantitative evaluation of a stance-phase controlled prosthetic knee joint for children
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3-S prosthesis: a preliminary report
10.1097/01241398-199101000-00022 · 1991 · External reference
Participation in active play of children who use lower extremity prostheses: An exploratory questionnaire
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Toes that look like toes: Cambodian children’s perspectives on prosthetic legs
10.1177/1049732311411058 · 2011 · External reference
Lived experience of children and adolescents with lower-limb loss who used a prosthesis: A qualitative study.
2022 · External reference
Development and measurement properties of the Orthotics and Prosthetics Users’ Survey (OPUS): a comprehensive set of clinical outcome instruments.
10.1080/03093640308726682 · 2003 · External reference
Prosthesis evaluation questionnaire for persons with lower limb amputations: assessing prosthesis-related quality of life.
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Consumer design priorities for upper limb prosthetics.
2007 · External reference
Unresolved reference
2007 · External reference
Quality of life of children with lower limb deformities: A systematic review of patient-reported outcomes and development of a preliminary conceptual framework. Journal of Limb Lengthening &
2017 · External reference
Product Narrative: Prostheses, AT2030 programme & ATscale Global Partnership for Assistive Technology.
2020 · External reference
Ethical Considerations and Approaches for Conducting Clinical Research Studies related to Prosthetics, Orthotics and Wheelchair Technology in the Low- and Middle-Income Countries.
2021 · External reference
Conceptual and methodological advances in child-reported outcomes measurement.
10.1586/erp.10.52 · 2010 · External reference
Researching with young children: Seeking assent.
10.1007/s12187-010-9084-0 · 2011 · External reference
Unresolved reference
2022 · External reference
Present and future Köppen-Geiger climate classification maps at 1-km resolution.
2018 · External reference
Unresolved reference
2022 · External reference
What matters to children with lower limb deformities: an international qualitative study guiding the development of a new patient-reported outcome measure
10.1186/s41687-021-00299-w · 2021 · External reference
Pediatric patient-reported outcome instruments for research to support medical product labeling: report of the ISPOR PRO good research practices for the assessment of children and adolescents task force.
10.1016/j.jval.2013.04.004 · 2013 · External reference
Further validation of the Child and Adolescent Scale of Participation (CASP).
10.3109/17518420903087277 · 2009 · External reference
Measuring participation in children with disabilities using the Assessment of Life Habits.
10.1111/j.1469-8749.2007.00666.x · 2007 · External reference
Cerebral Palsy Profile of Health and Function: Upper Extremity (UE-CP-PRO) Domain’s Responsiveness Post Surgery.
10.1016/j.apmr.2019.08.133 · 2019 · External reference
PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in healthy and patient populations.
10.1097/00005650-200108000-00006 · 2001 · External reference
Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities.
2022 · External reference
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10.1007/978-94-007-0753-5_324 · 2014 · External reference
The World Health Organization quality of life assessment (WHOQOL): development and general psychometric properties.
10.1016/s0277-9536(98)00009-4 · 1998 · External reference
PedsQL correlates to PODCI in pediatric orthopaedic outpatient clinic
10.1097/bpo.0000000000000202 · 2014 · External reference
The PedsQL™* 4.0 as a pediatric population health measure: feasibility, reliability, and validity
10.1367/1539-4409(2003)003<0329:tpaapp>2.0.co;2 · 2003 · External reference
The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ Measurement Model in 25,000 children.
10.1586/14737167.5.6.705 · 2005 · External reference
The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module.
10.1017/s001216220600096x · 2006 · External reference
Management of Post-Amputation Pain.
2020 · External reference
Dermatologic Conditions in Persons with Lower Limb Amputations: a Review.
2024 · External reference
The prevalence of phantom sensation and pain in pediatric amputees
10.1016/0885-3924(94)00062-p · 1995 · External reference
Prosthetic socket fit comfort score.
10.1080/09638280310001603983 · 2003 · External reference
Pain assessment for children: overcoming challenges and optimizing care.
10.1097/pec.0b013e31822877f7 · 2011 · External reference
Pain location: validity and reliability of body outline markings by hospitalized children and adolescents.
10.1002/nur.4770120506 · 1989 · External reference
A new analogue scale for assessing children’s pain: an initial validation study
10.1016/0304-3959(95)00171-9 · 1996 · External reference
The McGill Pain Questionnaire: major properties and scoring methods
10.1016/0304-3959(75)90044-5 · 1975 · External reference
Pain assessment in children. Anaesthesia &
2019 · External reference
A survey of function in children with lower limb deficiencies
10.3109/03093649909071640 · 1999 · External reference
Unresolved reference
2019 · External reference
Lower-Limb Amputation in Children and Adolescents-A Rare Encounter with Unique and Special Challenges.
2022 · External reference
Issues faced by people with amputation(s) during lower limb prosthetic rehabilitation: A thematic analysis.
10.1097/pxr.0000000000000070 · 2022 · External reference
Osseous overgrowth after amputation in adolescents and children
10.1097/01241398-199601000-00016 · 1996 · External reference
Construct validity of the Prosthetic Limb Users Survey of Mobility (PLUS-M) in adults with lower limb amputation.
10.1016/j.apmr.2016.07.026 · 2017 · External reference
The SIGAM mobility grades: a new population-specific measure for lower limb amputees.
10.1080/0963828021000056460 · 2003 · External reference
The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change
10.1097/00004694-199809000-00001 · 1998 · External reference
Pediatric outcomes data collection instrument is a useful patient-reported outcome measure for physical function in children with osteogenesis imperfecta
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Functional status in children with limb deficiency: development and initial validation of an outcome measure
10.1016/s0003-9993(96)90185-9 · 1996 · External reference
Functional outcome after prosthetic rehabilitation of children with acquired and congenital lower limb loss
10.1097/bpb.0b013e3283449362 · 2011 · External reference
Validity of the miller function and participation scales
10.1080/19411243.2013.850937 · 2013 · External reference
The Prosthetic Upper Extremity Functional Index: development and reliability testing of a new functional status questionnaire for children who use upper extremity prostheses
10.1016/s0894-1130(01)80039-9 · 2001 · External reference
Measuring mobility limitations in children with cerebral palsy: content and construct validity of a mobility questionnaire (MobQues). Developmental Medicine &
2010 · External reference
Reliability of the pediatric evaluation of disability inventory (PEDI).
10.1300/j006v24n03_05 · 2004 · External reference
A content validity study of the Pediatric Evaluation of Disability Inventory.
10.1097/00001577-199100340-00002 · 1991 · External reference
The Lower Extremity Functional Scale (LEFS): scale development, measurement properties, and clinical application.
1999 · External reference
The amputee mobility predictor: an instrument to assess determinants of the lower-limb amputee’s ability to ambulate.
10.1053/apmr.2002.32309 · 2002 · External reference
Evaluation of functionality in acquired and congenital upper extremity child amputees.
10.3944/aott.2012.2631 · 2012 · External reference
Comparison of clinical test and questionnaires for the evaluation of upper limb prosthetic use in children.
10.1080/09638280410001708931 · 2004 · External reference
Three-dimensional-printed upper limb prosthesis for a child with traumatic amputation of right wrist: A case report.
10.1097/md.0000000000009426 · 2017 · External reference
The amputee mobility predictor: an instrument to assess determinants of the lower-limb amputee’s ability to ambulate
10.1053/apmr.2002.32309 · 2002 · External reference
Knee Disarticulation Prosthesis: A project focussing on the needs of amputees in land-mine affected countries.
2016 · External reference
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Questionnaire sur la satisfaction des personnes amputées du membre inférieur face à leur prothèse: Développement et validation
10.1177/000841749906600103 · 1999 · External reference
Upper limb prosthetic outcome measures (ULPOM): a working group and their findings. JPO
10.1097/jpo.0b013e3181ae970b · 2009 · External reference
Prosthesis satisfaction outcome measurement in pediatric limb deficiency.
10.1016/s0003-9993(97)90084-8 · 1997 · External reference
Issues of importance reported by persons with lower limb amputations and prostheses
1999 · External reference
Lower-limb amputee needs assessment using multistakeholder focus-group approach
10.1682/jrrd.2008.02.0031 · 2009 · External reference
Developing a paediatric healthcare research network: key learnings from the ’starworks’ child prosthetics project.
10.1080/03091902.2022.2089251 · 2022 · External reference
Fusion of horizons: Co-designing with Cambodian children who have prosthetic legs, using generative design tools.
10.1080/15710882.2011.637113 · 2012 · External reference
Barriers and facilitators to healthcare access for children with disabilities in low and middle income sub-Saharan African countries: a scoping review.
10.1186/s12913-019-4822-6 · 2020 · External reference
Meeting the needs of people with physical disabilities in crisis settings
10.2471/blt.19.246918 · 2019 · External reference
Transfemoral amputation and prosthesis provision in Tanzania: Patient and provider perspectives.
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Measuring health-related quality of life in young children: how far have we come?
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2003 · External reference
Repair strategies for assistive technology in low resource settings.
2023 · External reference
Age at first prosthetic fitting and later functional outcome in children and young adults with unilateral congenital below-elbow deficiency: a cross-sectional study.
10.3109/03093640903584993 · 2010 · External reference
Physical functioning, pain and quality of life after amputation for musculoskeletal tumours: a national survey
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Health Related Quality of Life (HRQOL) in pediatric population after surgical intervention in traumatic lower limb injuries: A prospective cohort.
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How many interviews are enough? An experiment with data saturation and variability.
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Issues related to children participating in clinical research
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