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References from “What does this mean for our future?” uncertainty management in mothers’ narratives about the diagnosis and birth of their child with Down syndrome. Local targets link to admitted publications; unresolved targets remain external evidence.
Down syndrome.
10.1056/nejmra1706537 · 2020 · External reference
Unresolved reference
2022 · External reference
Have we done our last amniocentesis? Updates on cell-free DNA for Down syndrome screening
10.1007/s00247-017-3958-y · 2018 · External reference
Receiving the news of Down syndrome in the era of prenatal testing
10.1002/ajmg.a.61438 · 2020 · External reference
Mothers of children with Down syndrome reflect on their postnatal support
10.1542/peds.2004-0928 · 2005 · External reference
Kishanani, PS, for the Down Syndrome Diagnosis Study Group. Postnatal diagnosis of Down syndrome: Synthesis of the evidence on how best to deliver the news
10.1542/peds.2009-0480 · 2009 · External reference
Prenatal diagnosis of Down syndrome: How best to deliver the news
10.1002/ajmg.a.33082 · 2009 · External reference
Receiving the initial Down syndrome diagnosis: A comparison of prenatal and postnatal parent group experiences.
10.1352/1934-9556-51.6.446 · 2013 · External reference
Family sense-making after a Down syndrome diagnosis.
10.1177/1049732320935836 · 2020 · External reference
Balfe, J, Molloy E, Marsh L. Down syndrome: Parental experiences of a postnatal diagnosis
10.1177/17446295221106151 · 2023 · External reference
New insights into the formation and duration of flashbulb memories: Evidence from medical diagnosis memories.
10.1002/acp.3704 · 2020 · External reference
Coping with a child with Down syndrome: The experiences of mothers in Hong Kong.
10.1177/104973202129119856 · 2002 · External reference
Stress and coping in primary caregivers of children with a disability: A qualitative study using the Lazarus and Folkman Process Model of Coping
10.1111/j.1471-3802.2005.00033.x · 2005 · External reference
Hope, coping, and relationship quality in mothers of children with Down syndrome.
10.1111/jmft.12249 · 2018 · External reference
The ups and downs of Down syndrome: A qualitative study of positive and negative parenting experiences.
10.1177/0192513x18812192 · 2019 · External reference
The presence of posttraumatic growth (PTG) in mothers whose children are born unexpectedly with Down syndrome.
10.3109/13668250.2016.1247207 · 2017 · External reference
Communication and uncertainty management.
10.1111/j.1460-2466.2001.tb02892.x · 2001 · External reference
Communicatively exploring uncertainty management of parents of children with type 1 diabetes
10.1080/10410236.2018.1446249 · 2019 · External reference
Uncertainty management and decision making: Parents’ experiences during their first visit to a multidisciplinary clinic for their child’s vascular anomaly.
10.1016/j.pedn.2020.02.009 · 2020 · External reference
“Me against the world”: Parental uncertainty management at home following neonatal intensive care unit discharge.
10.1080/15267431.2016.1233105 · 2017 · External reference
Mothers’ reflections on the diagnosis and birth of their child with Down syndrome: Variability based on the timing of the diagnosis
2024 · External reference
Flexible coding of in-depth interviews: A twenty-first-century approach.
10.1177/0049124118799377 · 2021 · External reference
Unresolved reference
2020 · External reference
10.1191/1478088706qp063oa
10.1191/1478088706qp063oa · 2006 · External reference
The art of coding and thematic exploration in qualitative research.
2019 · External reference
A team-based approach to open coding: Considerations for creating intercoder consensus.
10.1177/1525822x19838237 · 2019 · External reference
A guide to conducting consensual qualitative research.
10.1177/0011000097254001 · 1997 · External reference
Unresolved reference
2021 · External reference
What is a “balanced” description? Insight from parents of individuals with Down syndrome.
10.1007/s10897-011-9417-2 · 2012 · External reference
How willing are patients to question healthcare staff on issues related to the quality and safety of their healthcare? An exploratory study.
10.1136/qshc.2007.023754 · 2008 · External reference
Encouraging patients to ask questions: How to overcome “white-coat silence.”
10.1001/jama.2013.5797 · 2013 · External reference
The “little extra” that alleviates suffering.
10.1177/0969733007075877 · 2007 · External reference
Parents’ perceptions of caring characteristics of physicians and nurses
10.20467/1091-5710.22.1.pg47 · 2018 · External reference
Negotiating care in the special care nursery: Parents’ and nurses’ perceptions of nurse-parent communication.
10.1016/j.pedn.2015.03.006 · 2015 · External reference
Understandings of Down’s syndrome: A Q methodological investigation.
10.1016/j.socscimed.2006.03.004 · 2006 · External reference
Neidig L. Collective AIDS activism and individuals’ perceived self‐advocacy in physician‐patient communication
10.1111/j.1468-2958.2000.tb00762.x · 2000 · External reference
Reconstructing life goals after the birth of a child with Down syndrome: Finding happiness and growing
10.1023/a:1012955018489 · 2000 · External reference
Evaluating for disparities in prenatal genetic counseling.
10.1016/j.ajogmf.2021.100494 · 2002 · External reference
Health disparities based on socioeconomic inequities: Implications for urban health care.
10.1097/00001888-200412000-00004 · 2004 · External reference
