Research graph
References from Equitable Language Access in Neonatal Research. Local targets link to admitted publications; unresolved targets remain external evidence.
The culture of research communication in neonatal intensive care units: key stakeholder perspectives
10.1038/s41372-021-01220-5 · 2021 · External reference
Short-term outcomes of infants enrolled in randomized clinical trials vs those eligible but not enrolled
10.1001/jama.2015.5734 · 2015 · External reference
The “inclusion benefit” in clinical trials
10.1016/s0022-3476(99)70400-2 · 1999 · External reference
Enrollment of extremely low birth weight infants in a clinical research study may not be representative
10.1542/peds.2011-2121 · 2012 · External reference
Do sick newborn infants benefit from participation in a randomized clinical trial?
10.1016/s0022-3476(99)70428-2 · 1999 · External reference
Randomized controlled trials in very preterm infants: does inclusion in the study result in any long-term benefit?
10.1159/000362784 · 2014 · External reference
10.17226/26479
10.17226/26479 · 2022 · External reference
History of medical ethics and perspectives on disparities in minority recruitment and involvement in health research
10.1097/00000441-200111000-00002 · 2001 · External reference
A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders
10.2105/ajph.2013.301706 · 2014 · External reference
Inclusion of non–English-speaking participants in pediatric health research
10.1001/jamapediatrics.2022.3828 · 2023 · External reference
Exclusion of families who speak languages other than English from federally funded pediatric trials
10.1016/j.jpeds.2023.113597 · 2023 · External reference
Persistent exclusion of non-English speakers in Pediatric research: a national analysis using ClinicalTrials.gov
10.1038/s41390-025-03845-0 · 2025 · External reference
Almost one in five physiotherapy trials excluded people due to lack of language proficiency: a meta-epidemiological study
10.1016/j.jclinepi.2022.09.007 · 2022 · External reference
Characteristics of clinical trials that require participants to be fluent in English
10.1177/1740774515592881 · 2015 · External reference
Racial and ethnic disparity in approach for pediatric intensive care unit research participation
10.1001/jamanetworkopen.2024.11375 · 2024 · External reference
Bridging the gap: understanding Latino willingness to participate in public health and clinical trials research across diverse subgroups
10.1016/j.conctc.2025.101440 · 2025 · External reference
Research subjects with limited English proficiency: ethical and legal issues
10.1080/08989620600654043 · 2006 · External reference
Federal Policy for the Protection of Human Subjects (“Common Rule”)
1991 · External reference
Unresolved reference
1995 · External reference
Informed Consent: Guidance for IRBs, Clinical Investigators, and Sponsors
2023 · External reference
Unresolved reference
External reference
WMA Declaration of Helsinki: Ethical Principles for Medical Research Involving Human Subjects
2024 · External reference
Integrated Addendum to ICH E6(R1): Guideline for Good Clinical Practice E6(R2)
2016 · External reference
Researcher perceptions of inclusion of study participants who use languages other than English
2025 · External reference
“How fluent do i need to be to say i’m fluent?” Research experiences of communities that speak languages other than English
2025 · External reference
Equity concerns across pediatric research recruitment: an analysis of research staff interviews
10.1016/j.acap.2023.06.032 · 2024 · External reference
Challenges in enrollment of minority, pediatric, and geriatric patients in emergency and acute care clinical research
10.1016/j.annemergmed.2007.11.002 · 2008 · External reference
Caregiver and provider perceptions of health disparities in the neonatal intensive care unit: a qualitative study
10.1016/j.acap.2024.07.015 · 2025 · External reference
Consent document translation expense hinders inclusive clinical trial enrolment
10.1038/s41586-023-06382-0 · 2023 · External reference
Unresolved reference
2025 · External reference
Maternal language disparities in neonatal intensive care unit outcomes
10.1038/s41372-021-01250-z · 2022 · External reference
Association between parent comfort with English and adverse events among hospitalized children
10.1001/jamapediatrics.2020.3215 · 2020 · External reference
Communication practices for families with languages other than English in US neonatal care units
10.1542/hpeds.2023-007607 · 2024 · External reference
Neonatal intensive care unit discharge preparedness among families with limited english proficiency
10.1038/s41372-018-0255-z · 2019 · External reference
Unequal care: racial/ethnic disparities in neonatal intensive care delivery
10.1016/j.semperi.2021.151411 · 2021 · External reference
Ethnic and racial disparities in the risk of preterm birth: a systematic review and meta-analysis
2013 · External reference
Racial and ethnic differences over time in outcomes of infants born less than 30 weeks’ gestation
10.1542/peds.2019-1106 · 2019 · External reference
Association of race/ethnicity with very preterm neonatal morbidities
10.1001/jamapediatrics.2018.2029 · 2018 · External reference
Applying a language justice framework in research: a step toward achieving health equity
10.1177/15248399241236182 · 2025 · External reference
Perspective: the case for research justice: inclusion of patients with limited English proficiency in clinical research
10.1097/acm.0b013e318208289a · 2011 · External reference
Evaluating the feasibility of incorporating in-person interpreters on family-centered rounds: a QI initiative
10.1542/hpeds.2017-0208 · 2018 · External reference
Communication training for pediatric hospitalists and its impact on clinical practice with families using languages other than English
10.1016/j.acap.2023.12.003 · 2024 · External reference
10.25302/10.2021.me.151133027
10.25302/10.2021.me.151133027 · 2021 · External reference
Effective recruitment of minority populations through community-led strategies
10.1016/j.amepre.2009.08.006 · 2009 · External reference
Unequal burden of disease, unequal participation in clinical trials: solutions from African American and Latino community members
10.1093/hsw/hlt001 · 2013 · External reference
Trust and consent: a prospective study on parents’ perspective during a neonatal trial
10.1136/medethics-2019-105597 · 2021 · External reference
Improving diversity in study participation: Patient perspectives on barriers, racial differences and the role of communities
10.1111/hex.13554 · 2022 · External reference
