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References from Opportunities to cultivate trust through communication behaviors. Local targets link to admitted publications; unresolved targets remain external evidence.
Lived experience is often dismissed – but we should recognise it as a form of expertise
2026 · External reference
Ableism in ambient intelligence systems’ source data related to clinical return-of-result conversations
10.1080/15265161.2025.2608627 · 2026 · External reference
Use of cognitive shortcuts in decision-making for children with severe neurologic impairment
10.1542/peds.2020-0930 · 2021 · External reference
Influence of genetic information on neonatologists' decisions: a psychological experiment
10.1542/peds.2021-052130 · 2022 · External reference
Words matter: the language of difference in human genetics
10.1016/j.gim.2022.11.011 · 2023 · External reference
Bridging genomics’ greatest challenge: the diversity gap
10.1016/j.xgen.2024.100724 · 2025 · External reference
Unresolved reference
External reference
Trust in nurse-patient relationships: a literature review
10.1177/0969733012468463 · 2013 · External reference
Education and training of non-genetics providers on the return of genome sequencing results in a NICU setting
10.3390/jpm12030405 · 2022 · External reference
Unresolved reference
2026 · External reference
Deadly medicine: creating the master race
10.1136/bmj.329.7464.517 · 2004 · External reference
Parental experience of interaction with healthcare professionals during their infant’s stay in the neonatal intensive care unit
10.1136/archdischild-2016-312278 · 2018 · External reference
Unresolved reference
2011 · External reference
Unresolved reference
2012 · External reference
Building trust and improving communication with parents of children with trisomy 13 and 18: a mixed-methods study
10.1177/0269216319860662 · 2020 · External reference
Effects of parent-provider communication during infant hospitalization in the NICU on parents: a systematic review with meta-synthesis and narrative synthesis
10.1016/j.pec.2021.04.023 · 2021 · External reference
The ALIGN framework: a parent-informed approach to prognostic communication for infants with neurologic conditions
10.1212/wnl.0000000000201600 · 2023 · External reference
Promoting trust in the registered nurse-patient relationship
10.1097/nhh.0000000000000322 · 2016 · External reference
Unresolved reference
2025 · External reference
Are public repository requirements exacerbating lack of diversity?
10.1016/j.tig.2020.03.004 · 2020 · External reference
Recruiting diversity where it exists: the Alabama genomic health initiative
10.1002/jgc4.1258 · 2020 · External reference
Community-based participatory research and its potential role in supporting diversity in genomic science
10.1353/hpu.2021.0127 · 2021 · External reference
The havasupai Indian tribe case—lessons for research involving stored biologic samples
10.1056/nejmp1005203 · 2010 · External reference
Unresolved reference
2011 · External reference
Unresolved reference
2026 · External reference
Trust in the early chain of healthcare: lifeworld hermeneutics from the patient's perspective
10.1080/17482631.2017.1356674 · 2017 · External reference
Unresolved reference
2025 · External reference
Bridging the genomic data gap in Africa: implications for global disease burdens
10.1186/s12992-022-00898-2 · 2022 · External reference
“I'm completely off base here on what this child is capable of”: a qualitative analysis of how medical ableism manifests in PICU clinicians' care of children with severe neurological impairment
10.1016/j.dhjo.2024.101691 · 2025 · External reference
Lifeworld hermeneutics: an approach and a method for research on existential issues in caring science
10.1111/scs.13201 · 2024 · External reference
The ‘ouR-HOPE’ approach for ethics and communication about neonatal neurological injury
10.1111/dmcn.13343 · 2017 · External reference
Hermeneutic caring conversations in forensic psychiatric caring
10.1177/0969733017705003 · 2019 · External reference
Factors influencing trustworthiness and perceived biases of medical information and genetic testing for Black and white Americans
10.1371/journal.pgen.1011800 · 2025 · External reference