Inherited epidermolysis bullosa
2010
Epidemiology of inherited epidermolysis bullosa based on incidence and prevalence estimates from the National Epidermolysis Bullosa Registry
10.1001/jamadermatol.2016.2473 · 2016
Quality of life and economic burden in recessive dystrophic epidermolysis bullosa
10.5021/ad.2016.28.1.6 · 2016
Making the best match: selecting outcome measures for clinical trials and outcome studies
10.5014/ajot.2013.006015 · 2013
Reliability and validity of the instrument for scoring clinical outcomes of research for epidermolysis bullosa (iscorEB)
10.1111/bjd.16350 · 2018
Development, reliability, and validity of a novel Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI)
10.1016/j.jaad.2013.09.041 · 2014
The Birmingham Epidermolysis Bullosa Severity Score: development and validation
10.1111/j.1365-2133.2009.09041.x · 2009
Japanese guidelines for diagnosis and treatment of junctional and dystrophic epidermolysis bullosa
10.1007/s00403-002-0379-y · 2003
Responsiveness, minimally clinically important difference, and cut-offs for the Pemphigus Disease Area Index and Autoimmune Bullous Intensity Score for pemphigus
10.1016/j.jid.2017.07.116 · 2017
Development of the CLASI as a tool to measure disease severity and responsiveness to therapy in cutaneous lupus erythematosus
10.1001/archdermatol.2010.435 · 2011
Definitions and outcome measures for bullous pemphigoid: recommendations by an international panel of experts
10.1016/j.jaad.2011.06.032 · 2012
The Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI): grading disease severity and assessing responsiveness to clinical change in epidermolysis bullosa
10.1111/jdv.13953 · 2017
Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument
10.1111/j.1365-2133.2009.09347.x · 2009
Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese
2015
Cross cultural adaptation of the ‘Quality of Life in Epidermolysis Bullosa’ (QOLEB) questionnaire: validation and results of a Hispanic translation
2013
Health-related quality of life in epidermolysis bullosa: validation of the Dutch QOLEB questionnaire and assessment in the Dutch population
10.2340/00015555-1758 · 2014
The COSMIN checklist for assessing the methodological quality of studies on measurement properties of health status measurement instruments: an international Delphi study
10.1007/s11136-010-9606-8 · 2010
Evaluation of reliability, validity, and responsiveness of the CDASI and the CAT-BM
10.1038/jid.2011.440 · 2012
Reliability and convergent validity of two outcome instruments for pemphigus
10.1038/jid.2009.72 · 2009
A guide to appropriate use of correlation coefficient in medical research
2012
Does this patient have an infection of a chronic wound?
10.1001/jama.2012.98 · 2012
Clinical signs of infection in diabetic foot ulcers with high microbial load
10.1177/1099800408326169 · 2009
Instrument for scoring clinical outcome of research for epidermolysis bullosa: a consensus-generated clinical research tool
10.1111/pde.12317 · 2014
Progress toward treatment and cure of epidermolysis bullosa: summary of the DEBRA International Research Symposium EB2015
10.1016/j.jid.2015.10.050 · 2016
Bone-density testing interval and transition to osteoporosis in older women
10.1056/nejmoa1107142 · 2012
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