How to integrate patient and carer perspectives, methodological rigor, and ethics into biomedical research funding

Hella Lichtenberg; Christina Müller; Henk Lindeman; Leila Ali; Anja Minheere; Monique van den Eijnden; Ulrich Dirnagl

doi:10.1371/journal.pbio.3003551

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How to integrate patient and carer perspectives, methodological rigor, and ethics into biomedical research funding

Hella Lichtenberg, Christina Müller, Henk Lindeman, Leila Ali, Anja Minheere, Monique van den Eijnden, Ulrich Dirnagl

PLOS Biology2025doi:10.1371/journal.pbio.3003551

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Abstract

Patient and carer perspectives, methodological rigor, and ethical considerations can all be successfully integrated into the biomedical funding process. Drawing on experiences with ERA-NET NEURON, we present a structured, scalable, and transferable model for funders to follow.

Authors

Hella Lichtenberg#1 Christina Müller#2 Henk Lindeman#3 Leila Ali#4 Anja Minheere#5 Monique van den Eijnden#6 Ulrich Dirnagl#7

Institutions

McGill University

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External reference records

Biomedical research: increasing value, reducing waste

10.1016/s0140-6736(13)62329-6 · 2014

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2021

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Lived experience involvement in research funding: taking a more systematic approach

10.1038/s44220-023-00029-9 · 2023

Patient and public involvement in health research as essentially contested concept? A scoping review

2025

Defining patient engagement in research: results of a systematic review and analysis: report of the ISPOR patient-centered special interest group

10.1016/j.jval.2020.01.019 · 2020

Interview with a patient reviewer

2021

COVID-19 lockdown consequences on body mass index and perceived fragility related to physical activity: a worldwide cohort study

10.1111/hex.13282 · 2022

How to integrate patient and carer perspectives, methodological rigor, and ethics into biomedical research funding

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